Sermon
Episode #16 - Autism Awareness ft. The Blankenships
Publisher transcript
Transcript
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OK, yeah, My name is Justin Blankenship.
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And so we're going to begin. I was born and raised in in the
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church. I guess they have a choice early
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on, but no, no, but overtime I made it my choice.
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And so that's why I'm still here.
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And y'all was blessed to, to have a family and parents that
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put importance and significance on attending church and and
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knowing the Lord. And you know, I had a
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grandmother and a great grandmother.
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So probably around 4th or 5th generation, maybe 5 so or our
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songs will be 5 or 6. I can't have to go back and and
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and think about it. But but yeah.
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So yes, it's been a wonderful, wonderful, yeah, life in the
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Lord and really blessed. And I guess so as far as you
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want to start with how we met or something or?
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Yeah. Or if you don't mind, when what
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age were you when you first got baptized and got the Holy Ghost?
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I think I was 8 or 9 when I first got baptized in the Holy
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Ghost. It was at a children's
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children's church revival or something like that.
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Was a two or three night of. Them do that much more than do.
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They no, and I remember where I was standing at, at the altar
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and and then I think the next night is when they baptized a
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few, a few of the kids that wanted to, and I want to say it
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was I was 8 or 9. So yeah, about that age, I can't
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remember exactly. So they just kind of like it was
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a service where they just, they had the baptismal tank ready so
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any kid who wanted it could. Yeah, that's cool.
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Yeah, I think we'll sit up that way.
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And it was the older styles you've seen where the baptism,
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the baptistery, excuse me, was built into the wall behind the
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stage, had the big window with some like paintings and stuff.
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So, so, yeah, that's, that's my experience.
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And I remember it very well because my dad was with me.
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He took me to the back and we met the pastor and and had a
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change of clothes and, and got in.
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Yeah. So I just remember feeling, you
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know, even at 8 or 9, just like just a fresh feeling, just
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almost like just, I don't know, newness, you know, it's about
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talks about newness of life. And that's a perfect way, you
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know, way of explaining it to you.
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Yeah, you're trying. My name is Brittany.
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I started going to church actually with an aunt and uncle,
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and then we kind of had someone that stepped in to kind of
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mother us that would take us here in Alabama.
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So I got in church and got the Holy Ghost at around age 14.
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And that's when I started coming to church and I would go every
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weekend. My aunt would pick us up and
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take us to church and we would do youth stuff with them because
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they were youth leaders at their church.
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And then I've just been in church ever since.
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OK, that's good, good leadership.
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And then when, what, how, when did you guys, when did you guys
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meet? Who, who, who reached out to the
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first person first? Let me ask that.
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I think I know the answer, but I'll ask anyways.
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Yeah, I was very shy. Very, very shy.
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Yeah. So I think we have met a few
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years before, probably as early as 2010, maybe at church
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service, maybe like a sectional thing, sectional rally, youth
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rally or something. But I was invited or asked to.
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Yeah. So I was invited to be involved
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in a youth ministry for a summer in Smyrna, TN, which is put the
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pastor Brother, Brother Sadler, Carlos Sadler.
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And so I did a 2-3 months there in the summer, would drive on
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the weekends, spend the weekend there and, and, and Middle
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Tennessee and we do youth activities and Sunday would have
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you know, youth, you know, youth Sunday school, if you will.
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And we might have had a few Youth Services on Friday night
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Youth Services or something like that.
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And it was maybe on a Sunday night because I, I would, I
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would stay Sunday night to and, and then drive back to Athens.
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So I'll spend the weekend there and drive back to Athens.
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And so I would say a lot of Sunday, Sunday night services or
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most Sunday night services during that time.
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And so I remember seeing Brittany one night in the
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hallway. So I went to her and said, Hey,
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how's it going? And she?
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I pretty much said hi as I was still walking by and didn't pay
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much attention. And so, you know, I knew her
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family, her, her aunt and uncle. I was at the church at the time.
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And so I asked, began to ask questions, you know, around that
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time about her and her Uncle Tony was filling me in.
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And but I remember being on the platform that night, the same
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night. And I think I told you this
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before playing the bass and remember just playing the bass
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but also eyeballing her. So you know what's funny?
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You, you don't remember this, but I do.
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When I first started coming back to Lifegate, and I'm telling how
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many years ago, I was hanging out with Seth a lot.
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Seth was one of the ones who kind of like took me under his
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wing when I first started coming back.
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And I forget what it was, but you were kind of, you came to
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Lifegate a few times, but I don't think it was consistent.
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Well, there was one time you came and it was like a Wednesday
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night or something and Seth wanted to go get dinner.
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So he kind of forced you to go get dinner.
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And I was riding with Seth. So I rode in the backseat of the
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car while you and Seth were up there talking.
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And I remember distinctly you first telling Seth about meeting
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Brittany at, at this service. And I, I distinctly remember,
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and this is not me trying to give you bounty points, but I
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distinctly remember you tell us that like along the lines of
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like, Oh man, I this girl, she's so pretty.
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Like I can't wait to go talk to her.
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Like, like he was bragging hard. And the only reason why I knew
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like I didn't know who you were, but I did because I knew
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Kimberly, because Kimberly was going to school and I knew Dylan
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in the whole night. So I was like, Oh, it's another
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her sister. But I remember that.
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I remember that conversation and I remember just being like, oh,
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this dude's done falling in love with this girl.
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Yeah, well, you know, credit to Kimberly and Dylan for sure
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because we we did 1 double date kind of just friends that they
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help facilitate. So shout out to them.
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Yeah, they like to take credit that they were pushing to get us
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together. But but yes, But yeah, that
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night at the church, at the church in Smyrna, I, I kind of
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made my mind up then. Yeah, I could tell.
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Like I said, I could tell on that car.
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Ride but it it wasn't until that fall, really.
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I think late that fall is when. You started coming to the church
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in Alabama that I was going to. Yeah, I started showing up on
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Sunday nights because, you know, we don't have Sunday night
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services. Here SO.
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And, and I was working Sunday mornings too, at the time I was
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working, having to work weekends.
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So to try to get my church time in, yeah, add, add a bonus.
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I was going to see her. But I know, I know at the time
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of whenever it was that this car ride happened, I know that you,
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you had just, you had just met her because you're like, oh,
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because I remember you telling Seth like, I'm, I'm going to,
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I'm going to find out who's more about this girl and I'm going to
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go talk to her. Like I remember that
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conversation because you know, Seth at that age, he was, he was
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also like trying to, you know, we all were as guys.
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But here I am the backseat. I'm just hearing this whole
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conversation like I don't know any of these people.
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I don't know where we're going, but I will say another cool
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thing because you mentioned it that you you played the bass at
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that church. One of the first memories I have
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of you outside of that was at the old railroad bed church when
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you first started coming to Lifegate and you said they said
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that you were going to be playing music.
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I was like, OK, cool. Justin Blankenship now Seth, now
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he's getting a lot of talk here. He talked you up big, but he was
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like, he's like, oh man, this Justin guy, he do, he can play
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any instrument. It don't matter what you give
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him, he can play it. And I'm like, oh, that's, that's
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kind of cool. And I didn't understand it until
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they're like, oh, yeah, he's going to play the banjo.
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I was like, this dude can play the banjo.
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And sure enough, one of the songs he's played the banjo.
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Then he was like, I can play the bass, the guitar, the piano, the
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organ, everything. And I was like, wow, that's got
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to take some serious like musical talent.
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I mean, how many, how many instruments can you play?
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Totals. Can you count it?
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I think you about I think that's about all you know, and and I
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did a poor and it's not me. It's not me being modest at all.
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It's not false modesty. I did a very poor mentation of a
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banjo because, you know, I had borrowed one maybe a summer or
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two before that time of a friend of the family and it was a very
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the banjo probably was 50 years. I'm just a very, very old banjo.
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And so they allowed me to take it home because they just had it
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in case. And so I just, you know, like we
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always do when we get something new strings on it, we we play
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around with it and try to figure out chords and, and so, yeah, so
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I actually had to call the same family friend to get it back for
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that, that church service. I remember that because I like I
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said, I'll never get it sets like, Oh yeah, Justin can play
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anything. I was like, OK, cool, what's he
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going to play? He's like, he's going to play
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the banjo. I was like, well, you weren't
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kidding when you said anything. Like I wouldn't expected that,
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but it was cool. Ever since then, you know, you,
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you kind of coming in now, but I've always taken you as a very
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humble person, to be honest, as far as just when you play, you
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just thought I'd go in there and just do your job, you know, and
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just just go. You don't don't make a noise or
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ruckus or anything like that. But I'd always appreciate that.
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But that was one of my first memories of you just
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specifically. Unfortunately, I don't have a
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lot of room to just because I think Justin brought you here,
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but I just figured I'd let you know.
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I was like, I was like, Justin won't remember this conversation
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he had for Seth and he won't remember my first impression of
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him either. So I can go ahead and bring that
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one out. Well, no, thanks for all that.
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Thanks for reminding me. I I vaguely remember that now
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because we were in his car, right?
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Yeah, you're right. I was in the front seat,
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passenger side, and you were in the back.
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I do remember that now, but I would have not remember that
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unless you. I think he took us.
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I think Seth had us all go to. I don't know if it was
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Applebee's or Logan's or something, but yeah, I was in
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his car and I because my parents left and Seth was my taxi driver
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everywhere at that time. I was going anywhere Seth was
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taking me or Colby was taking me.
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And so then, then that's when that conversation happened.
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I just remember thinking in my head, I was like, I don't know
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who this dude is. I don't know who this girl is,
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but I'm doing right now. This dude is enthralled.
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But whoever she is, wherever she is.
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Oh, yeah, Like I said, I was that night, Yeah.
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I was thinking more about the. I was thinking more about, well,
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how to say that I was thinking more of than just playing the
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bass that night. You're not the only person I've
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ever gone through that, I can tell you that.
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So yeah, by the way, I love Seth.
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I think we all do. So just want to give a shout out
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to him because I've known him for know how long they first
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moved here. I can tell you he, he loves you.
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I, he's bragged about you several times.
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And I think a lot of it comes down to, and I could be wrong
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and he might get on to me, he might ask me to cut it.
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But I think when everything had happened with his mother, it's,
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if I remember correctly, he mentioned that you, you reached
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out to him a lot and we're there for him a lot.
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And I can tell you that he had mentioned that quite often, how
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that meant a lot to him. So I imagine that that
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friendship was kind of built on some pretty unfortunate but
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solid foundation there. Yeah, yeah, for sure.
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But you know, I love the Tessens.
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They're, you know, they're family.
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And so they mean a lot to us. That's all good.
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He'll yeah, maybe he'll get a crack and laugh out of that or
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something. But obviously it worked.
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Whatever you did worked because you won.
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So tell me how that all came to fruition when you finally were
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like, hey, let's, let's, let's to hang out.
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Well, it, I think it's, it was like, like I mentioned, it was
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facilitated through Kimberly and Dylan.
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They were dating at the time. And then we got together one
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night and that's all she wrote, That's all she wrote.
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And then, you know, we just hang out as friends and get to know
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each other and and then as time passed, became more serious and.
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How long has it been for you? 2 together.
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Well, total. How should have been a while?
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About 13 years, probably 12 or 13 two. 1013 So yeah, almost 13
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years. Yeah, because I was about a year
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and a half, maybe year and a half, maybe pushing two years
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before I met Brooke. When that kind of car
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conversation happens, I was like, I know it's got to be at
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least 12 years. So I.
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Just put up, just put up with me for that long.
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But anyway, so Fast forward now we got 2 kiddos and how's that
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all going? It's going.
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That's about what you can say as parents, is that it's going
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somewhere at least. I, I, I bring them up because,
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and I'll be honest here, and this is kind of one of the
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reasons I respect you guys a lot.
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But when it comes to kids, especially in today's day and
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age who are on on the spectrum, if I can say that it's kind of
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like taboo around people. I've never thought of it as that
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way just cause to me it's like, I mean, we're all different in
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our own way. I think it's becoming more
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recognizable. That's why it's more common.
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I think it's always been there. Just now we recognize it.
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But for some reason a lot of people just, they deny it or
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it's taboo or whatever. And I just don't see the, I've
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never thought there was a reason why just never made sense to me.
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And obviously it's a subject that my mom is always loved just
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because it's always, like I said, it's just people seem to
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not want to look at people the same way.
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And I don't think that should be the case.
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And unfortunately, I think that happens sometimes, even in the
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church, maybe not specifically our church, but in church
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environments, people don't quite understand people who have
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spectrum personalities or people who are raising kids that are
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that way. And you guys have done an
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amazing job. And from what I hear, you're
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very vocal about being honest about it all.
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And, and I think that's just a huge thing.
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That's the kind of testimony that I think a lot of people
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need to hear to give them kind of like just reassurance that
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there's nothing wrong. There's nothing to, you know, be
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upset about. I mean, it's just, it's just,
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it's just kids, you know what I mean?
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So I kind of wanted to get your perspective on all of that.
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And that's why, like I said, that's why my mom's here because
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she knows way more about it than I do.
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But it's a topic that needs to get out there.
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And I think people just need to just understand more about it.
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So if you would just enlighten me a little bit.
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Yeah. So our oldest, he is on the
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spectrum. He is mild, technically level 1,
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but they give levels. It doesn't really mean much.
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It just means how so much support they may need going
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forward for like insurance purposes really.
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But just like everyone else, he does have struggles.
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His just are a little different sometimes.
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But I am very open about it because I feel like some people
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are afraid to get their children tested.
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Just like other mental health problems like anxiety,
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depression, people, especially in the church, are afraid of
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things like that. Whereas I think that it's
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important for us to get whatever help, especially that our
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children need. And fan from a very young age
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showed a lot of sensory issues that some people just kept
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saying we're just normal. He's just normal boy.
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But as a mom, I just kind of knew something else was going
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on. So he started occupational
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therapy first before he did anything else.
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And then at age 5 is actually when he got tested.
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And then it made a lot more sense because he couldn't stand
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loud noises. He's a very picky eater, just
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smells too, and he can't stand certain smells.
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Very. Young That was one of the.
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About what age do you think it was that it's struck you that?
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Probably around age 2. So he didn't have the typical
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where they regress or don't speak because he was actually
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very verbal at a young age, which I think was more of the
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confusing part because a lot of kids that get diagnosed are
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having trouble with speaking. And he was actually the
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opposite. He liked to talk all the time
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and still does. But there was just, I guess,
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some quirks about him that were just different.
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He also, instead of getting upset about things like normal
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tantrums, they would last long time, 30 minutes, an hour or
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sometimes, and it would be hard to redirect.
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So I thought that was a little unusual at the time.
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But as he was our first, we didn't really know a whole lot.
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We're just swinging at us. Parents really still are, but
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yeah, so. Well, I mean, I think it's
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important to just highlight and emphasize.
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There's nothing wrong with it. And, and, and a lot of people
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nowadays, like they say, you say the word spectrum and it's like
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everybody just. Defensive.
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Gets defensive they go to the most serious case of it.
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You know what I mean of like you have those cases where you have
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kids who are non verbal and they can't like it's just they're
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it's very intense. Everybody just likens it all to
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the same and it's not that way. Everybody's different, even on
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the spectrum, which would to me, I like, I don't understand how
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that concept is hard just because it's like the word
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spectrum is like a spectrum of colors or personalities, like
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just because it's, you know, so there's more to it than just
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going to the, to the absolute. And that's why I'm like, this
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needs to get out. Yeah.
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And I think also the hard part for children like Finn is that
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people don't realize that he is different.
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And sometimes they look at us and our parenting as like you're
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the problem, rather than he sees the the world a little bit
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differently. And sometimes he needs a little
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bit of a different way of handling certain situations.
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But because he is so verbal and he is very smart, has a very
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high IQ, sometimes it's hard to notice that at first.
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And I just want people to know that everybody's doing their
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best as parents, and we are. We're all trying, but some kids
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just need a different way of approaching things.
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I know in teaching that's what makes a great teacher.
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I feel like is when you identify how to teach each child, they
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all learn differently. So you have to establish how am
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I going to teach AB CS to this one and then to this one, I'm
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going to teach them differently. And that's the way it is with
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parenting. I feel like every, everybody is,
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is taking a different approach or doing it.
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And the whole idea of spectrum even, I mean, we've come a long
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way just to come to using the word spectrum.
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And it even even it, if my opinion does not encompass
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everything that it could, but like the, the example of colors
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is perfect. There are different shades and
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then there are all different colors.
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Everybody's different. And so I'm I'm really excited
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that you guys were agreeing to do this.
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I know the UPCI has a recognized that it is a ministry that needs
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to be in our churches as they started the new pro, the able
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program and I felt it and and you had mentioned you follow it
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too. But I still think more in our
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church, we follow it because of the connection we have.
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But I feel like it's a ministry that everyone should be
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following. You know, how can we help you
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help Finn? Be there for Finn.
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Yeah, especially in the church group, I think that just kind of
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knowing some differences would be helpful.
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Like some children that are like him won't do eye contact.
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And if they do, it's very brief and they're not trying to be
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disrespectful, but it makes them very uncomfortable sometimes.
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They also don't like to be touched.
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They may touch you and hug you in their own time, but they
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don't actually want you to touch them.
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It makes them very uncomfortable, which is the case
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with Finn. If you've ever seen him give a
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hug, he does it very different. He kind of leans close to you
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and that's it. There's very few people he will
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give a real hug to. I do think that it would be a
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good idea if our church can get together and do like some kind
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of sensory area at least like a sensory corner for children that
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get overwhelmed. Easy to give them a break if
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they need it. And I just want y'all to know
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during worship service. We're trying our best.
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Finn may be loud, OK and dancing but we are trying our best.
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He just does get very overstimulated with a lot of
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noise too, which makes his hyperactivity get higher
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heightens so. It makes you feel any better
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like my my wife, my wife gets well, my wife gets on me all the
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time because like I always joke and this is not like in AI say
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joke, but I'm not really. But like I always say that like
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I probably am real close to being on the spectrum myself
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because like there are like noises, especially during
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service like noises get me. That's why I like at the minute
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Brayden will start making a little bit of noise.
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I'll be like Brooke, we got to take him out just because I'm
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like it. Just, it just noises get me too.
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Not loudness and overwhelmingness, but just
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random noises can get me. I've never picked up once on Sin
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or any of them in the back, so you must be doing a great job.
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That's why we sit in the back. But also to you know, you know
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the drums as well. It's that's one of the reasons
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why we sit in the back as well, is because they.
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Get him. Yeah, yeah.
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And he was maybe 2 years younger than he is now.
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We were doing the headphones sometimes to kind of block out
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some of the noise because he would come in with his his hands
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over his ears And so and then the same same thing.
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What I could say with smells like we've been when he was
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younger, maybe not so much the smells, maybe not so much
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anymore, but when he was younger than he is now would be like a
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family Christmas or Thanksgiving.
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You have all the food on the table.
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He wouldn't go, he wouldn't go into that room.
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And you say, why not? He said because it's.
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Just too much. Yeah, the smell or something.
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He. Was he was telling you it smells
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yucky? Smells yucky, yeah.
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Even though it smells delicious to most of us, but to him it was
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overwhelming. And you know, to some of the
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first signs were, you know, the flapping of the hands, you know,
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and that some kids do that and that they may not be, you know,
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they might not have autism or, or anything like that.
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But looking back now to those signs that.
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Were. There, yeah, to those those
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classes, if you will. And another thing about that is
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that a lot of people think stemming is a behavior that
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needs to be controlled, but actually it's a behavior that's
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helping them regulate themselves so they don't act out.
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That is a way of their body getting rid of that extra
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overwhelm. And Finn does hand flap and
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jumps. So if you've ever seen him do
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that, he does it especially when he's happy or excited and he
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probably gets too close to you, but he doesn't even realize.
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But that is him helping his nervous system regulate.
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And there's different forms of stemming, but that's just what
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he does. Some kids also do vocal
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stemming, so they make different noises with their voice.
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And it's not that they're trying to be annoying, it's just that
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that is their body's way of compensating for being
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overstimulated and having all those emotions and feelings on
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the inside. Sure, and I think we could if we
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think about it, because a lot of us do have ways to regulate how
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we're feeling and we don't pay any attention to it.
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My husband will get me all the time because I'm an I bounce my
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knee all the time. And when it in the old days when
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we had the pews, you know, the hope and he would just kind of
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tap me and let me know, Hey, you're in our word stemming, you
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know, and I know I have those little things.
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I think that's why it's so passionate for me is because as
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a child, I can look back and say, oh, that that was me, but
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nobody understood it to be able to help me.
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So I love it when Finn gets all excited and and he's flapping
-
and everything, because I know he's it's joy.
-
It's overjoyed too. So it's awesome.
-
I guess, I guess a question that I would have would be so if you
-
had to give advice to other parents who they they might see
-
the same signs, but maybe like so you, you got fin tested,
-
which is a great thing. And there's no I for whatever
-
reason, people feel like there's like a shame in this idea of
-
checking to see is, is my kid this way or for me, it would be
-
myself. I could what would be your
-
advice to other parents who are on the fence?
-
Like they might have people saying, Oh, no, they're just
-
that's just kid being a kid. You don't, you don't want to go
-
like, like it's taboo versus just getting it just to see
-
because if it is, well, now you know how to approach them
-
differently. Yeah, so I'll just say when when
-
I first took Finn to get tested, Justin was actually kind of on
-
the fence. He wasn't sure if that was right
-
or not. And honestly, I feel like we all
-
kind of go through that, especially when it's your own
-
child, because you want everything to be perfect with
-
your child. You don't want them to say that
-
something is different and that your child is a little
-
different. I mean, we all want our children
-
to not be looked at different. And but I would just give advice
-
that if you have any questions or or even possibility, it
-
doesn't hurt to take them to a professional.
-
For one, you don't have to tell anybody.
-
You don't have to tell teachers. You don't have to tell their
-
doctor. You don't have to tell anyone
-
else if you don't want to. The reason why it's there really
-
is for you to understand your child more and to get them the
-
help that they need because they do a lot of times need some
-
help. Like Finn has a fine motor
-
delay. He needs help with those skills
-
required for writing and he will always need a little bit more
-
practice and assistance with that.
-
But we learned that in those assessments, and then we also
-
learn different techniques to help.
-
And I just feel like you should never be ashamed because it's
-
literally just getting your child help.
-
Kind of like you would take them to the doctor if they had the
-
flu. It's the same now.
-
It's not a sickness, but it is something that is different and
-
it helps if we understand the way that they think.
-
Right, exactly. And on the other side of this is
-
if you, you know, there's a lot of people that have the opinion
-
and I, I kind of can see it that, you know, in the medical
-
field, they would just want to label everything right.
-
And so, and so if you have that perspective, then it's much
-
harder to get past that to, you know, seek help us just like,
-
you know, we were talking about the that, you know, that the
-
flapping of the hands, you know, and sometimes it starts, you
-
notice it really early. But for him even now we're we're
-
seeing other things. He's 7.
-
And so just we got him tested at 5:00 and they said, well, some
-
things we don't recommend testing till they're 7.
-
So we're going through another another series of tests soon.
-
And so, yeah, it is to your point.
-
And then the taboo or, you know, some of that is just, you know,
-
I guess fighting against that or having that mentality of, well,
-
they'll just, it could just be something minor, but they want
-
to put a label on it, you know, And I think it's important just
-
to kind of keep a healthy perspective and open mind to
-
that, especially as men, you know, talking about myself.
-
And so so yeah, so it's, it's good to talk about it like we
-
are and, and, and be willing just to keep an open mind about
-
it because like, like you said, go get them tested.
-
And if, if nothing's wrong there are there, you know there's no
-
issues, then you, you've done your part as a parent, you.
-
Know also point out or remind what you mentioned earlier.
-
Nowhere in this does it say that he's not an intelligent child.
-
He's a lot of times you can have kids who are spectrum, but
-
they're even more intelligent, like their IQ is higher, they're
-
smarter. So has nothing to do with how
-
smart or IQ level or anything like that.
-
What they can accomplish is the exact same as anything else.
-
It's just the way that their personality is.
-
It's just a little different, has to be approached different.
-
I think that from my perspective of saying is people here, they
-
hear that and they go, Oh, that my kids, you're trying to say my
-
kids not as good as another kid or as perfect or whatever.
-
And was like, not the case at all.
-
It's just just a dip to me. I look at it like a different
-
personality. We all have different
-
personalities. People have certain tics.
-
One of my tics is seeing other people's tics.
-
It's it's you know, but the IQ level in the what they can
-
accomplish is on the same level, sometimes even higher than what
-
a normal child could be. You know what I mean?
-
Yeah. And the thing with that also is
-
that autism doesn't define what the child can learn because a
-
child can be non verbal and can have a higher IQ than any of us
-
in this room. But getting them tested gives
-
them the necessary tools they can so that they can function
-
like the rest of us. They have the tools that they
-
need to grow and develop that knowledge that's in their mind.
-
They have the tools they need to be able to take care of
-
themselves one day. And each of them is going to
-
have different struggles. Just like the rest of us in life
-
have different struggles, so will they.
-
As we said, it's a spectrum. Nobody will be the same.
-
But when you take them to get tested, the psychologist does
-
sit down with you and shows the findings and kind of guide you
-
of what help they may need or may not need.
-
And then they say things that might happen in the future and
-
you're like, no, that's I think we're good right here.
-
But I think it's important just to know that we all just want to
-
help our children. There's nothing wrong with them.
-
They can function just like everyone else.
-
They might just need it taught to them a little different.
-
And as parents, we want what's best for our children.
-
So why don't we want to give them the tools that they need to
-
succeed? And that's how I see it, is that
-
we're just giving different tools to him so that he can
-
learn the things that he needs to learn and grow.
-
I think the other important thing that you said, Brittany,
-
was parents a lot of times get blamed for it, it being a
-
behavior problem because of their parenting skills.
-
And I think it's so important to make sure that people know that
-
that's not what it is. It it's not don't just
-
automatically if you see him getting excited and trying to be
-
a little bit he's a little bit louder than the other person
-
that oh, they're letting him, you know, just act out in
-
church. That's not what it is.
-
That's not what it is. He that's how he's expressing
-
himself. Actually, there's a song about
-
it that we all sing. If you don't like the way I'm
-
worshiping now, wait till you see me when I get there is
-
something like that is how it goes.
-
Let him worship. Let me say, hey, good job mom,
-
that he is worshipping. He's in church.
-
You're bringing him to church. Please don't ever not bring them
-
to church. That is another heart string of
-
mine that when we have families in the church that have kids
-
that are going to be a little more, let them come.
-
Please bring them and let them feel God and worship and I mean
-
you. You pull out parents, you tell
-
them you know what I'm saying? Tell them you're how you feel
-
about something like that. Yeah.
-
And just saying if anybody listens to this and they're
-
having some struggle, was having some doubts, you can always come
-
talk to me. I may seem a little.
-
Introvert. Yeah, I don't always come up to
-
people and talk to them because I can be more introverted, but I
-
do not mind talking to anyone. And I don't mind giving the
-
little bit of ice I may have. Or just you can just talk to me.
-
I'll just listen. But you can also sit with us.
-
I mean, as long as you don't mind Finn probably dancing and
-
jumping on the pews, but because he does that often, like this
-
morning. But yeah, just you don't ever
-
need to feel bad if you're setting boundaries like you
-
should. And your children are just a
-
little different, a little more loud.
-
That's why we sit in the back. But we always want to keep
-
bringing him. We don't want him to be a burden
-
on anyone else. But also we feel like it's
-
important for him to feel God and be around people that are
-
worshipping God as well. And he loves Sunday school.
-
His brother, not so much, but he loves Sunday school and I think
-
it's important for even our children that have a little
-
extra needs to get that Sunday school because they learn a lot
-
and we don't realize, I think sometimes how much they do
-
learn. Shout out to the Sunday School
-
teachers. Yes.
-
And and the school teachers. Yes, all of them.
-
All the teachers, because y'all deal with a lot, because at home
-
we don't have to teach them. Except for, you know, normal
-
household stuff. Not learning stuff.
-
Couldn't do it. We thought about it for a while,
-
but no. But you know, to your point
-
about the behavior thing, excuse me, you know, that's where at
-
times I've struggled because, you know, I grew up in, in
-
church and so I know how you're supposed to behave, you know,
-
and now being adult, obviously I know what's, what's customary,
-
what's kind of expected anyways. But you know, as being a father,
-
you, you want to instill, you know, you know, good habits and
-
you want to instill morals and you want to make sure that
-
you're raising children that know how to behave.
-
And so I've had a hard time, you know, with, with that, because,
-
you know, if I'm just being transparent, you know, I do
-
think about what other people are thinking.
-
And in, in those moments, you know, we're, we're not just
-
letting let him jump off the walls, are, you know, are
-
purposely, you know, going out of his way to, you know, to be a
-
menace. But it, it's, it is a we talked
-
about it before we started it. It is hard to know where that
-
line is because you, like I said, you, you want to make sure
-
they grow up with with those values of how to treat others
-
and and how they should respect, you know, people space, the
-
church, the House of the Lord, but also their classmates, their
-
friends or teachers. All these things are very
-
important to us. And so how do we do that?
-
You know, in a way that that he'll understand it considering
-
his needs. Maybe go a little bit further
-
than a normal child. Yeah, I, if I can make any kind
-
of comment on it, I feel like for, for us as the church
-
family, this should be something that's very natural for us to be
-
able to adopt to just because of how much scripture.
-
And I mean, we can just look at Christ himself and how he
-
responded to the children who would come up to him.
-
And I, I find it hard to believe they walked single file quietly
-
with their hands on their sides. And I was just reading this when
-
the children came to him and the disciples wanted to stop them,
-
you know, And he, he reprimanded them for that.
-
He's let the children come. We, we see just how valuable the
-
children are to, to God. And you know, in my mind, I look
-
at it and this might be where a little part of me is, I don't
-
know, spectrum or whatever the case is, but in my mind, I'm
-
like, like I said, I see it as colors or personality.
-
But like God deals with all of us differently, even us who are,
-
are normal. We, we all have our own issues
-
and, and things that he deals with us and there's no judgement
-
from him on how we are. So why should we be that way
-
towards a child, no less, but other people who are dealing
-
with that. And I'm like, this should come
-
natural for us, in my opinion, to be able to understand and be
-
supportive of these kind of things because that's how God is
-
towards us. And there's literal scripture
-
for take care of the kids, make sure they have that opportunity
-
to come to me and, and, and be like that.
-
And we're supposed to be like the children ourselves.
-
If we want to have a good relationship with God.
-
So to me, it's like that should be something that's very
-
straightforward, very simple for what should be for us.
-
But I, I will ask, I'll, I'll, I'll play the role of someone
-
who who doesn't know anything about it.
-
If you were to like we mentioned how Finn is during worship and
-
during church. How should I look at that if I'm
-
if I don't know he he is the way that he is and I just this is my
-
first time witnessing it like how how should I?
-
How will be your advice to me as far as how?
-
To be supportive. How to be supportive, how to be
-
there for them if they need to be there for you guys?
-
Because you guys are not the only ones who who are having a
-
child like this. Some people are not as vocal
-
about it, which is why I'm thankful you guys are.
-
But how do we be supportive of you guys and supportive of the
-
children who are this way? I would say just pretty much
-
just ignore it. Like honestly, when there's a
-
tension more on us, it feels more like we're being judged for
-
what's happening. And I know that's not what
-
people usually mean by it, but as parents, it's kind of hard
-
because you see people looking at you and then then you just
-
kind of freeze and you're like, OK, well, we need to stop this
-
because it's distracting someone else.
-
Or do you have any? I guess that's about the gist of
-
it. Yeah, we, we understand for
-
sure. It can be, you know, disruptive
-
for sure at at times. And, you know, kids, kids will
-
be kids on a certain level. You know, absolutely.
-
You're with them every day. Yes, Brayden this morning had
-
one of those little things you pull and it makes noise and he
-
figured out how to pull it all out really fast.
-
And it was like this loud noise right when it was quiet.
-
We're like, but you know what it's like you said he's a kid.
-
He's a child. Well, I think someone said it.
-
I don't know where I heard it from, but, you know, we've, we
-
spent our whole lives learning how to be respectable adults.
-
You know, they haven't, they haven't had the same level of
-
training that we have. And that's just a normal kid.
-
And so, so, so yeah, it's, it's, it's difficult.
-
And I may have mentioned this to you before, Brittany, but before
-
we even, you know, dating and and got married and start having
-
kids, I've always done my best to try not to, you know, be out
-
in public and see a a child, just throw them stuff on the
-
floor being in a restaurant and catastrophe happens.
-
And, and judge that those parents.
-
I've always tried not to because I'm thinking, well, first of
-
all, I'm not a parent. So what, you know what?
-
I don't really have any grounds or rights to voice my opinion
-
or, you know, even internally, you know, pass judgment.
-
And I'm so glad I'm just to my own horn here, but I'm so glad
-
that I didn't do that because now, now I have a child that
-
has, you know, more, more challenges than a normal child
-
would have. So, so yeah, it's just, you
-
know, I guess it's keeping an open mind and and don't always
-
don't assume, don't assume. And, you know, I think we have a
-
great church family here. And so we haven't had any
-
issues. And all the support from the
-
teachers here in the school. Teachers have been great.
-
Yeah, I think our pastor has made that known to our church
-
family just by how all of the little kids during church will
-
want to run up there and stand beside him and he'll hold their
-
hand and jump with them and shout with them and worship with
-
them. And and if they're excited to be
-
in the altar, he's good with that because he is open minded.
-
Of course, Sister Pet and our first Lady being a teacher and
-
having all of the backgrounds she does in education, knowing
-
I, I love that about our church, I do that.
-
I feel like we are a good family for that, for that support.
-
I agree with you that we could grow with our sensory area.
-
And The thing is our school has that.
-
So it would be easy to just incorporate that into the Sunday
-
school as well. Yeah, Sister Penn had asked me
-
to try to get something together a little while ago, but I'm not
-
very good at starting things. So also something else I just
-
wanted to add about if you see a parent like that, if sometimes
-
if you could just tell them that they're doing a good job.
-
When you see parents that are struggling, I think that as a
-
community, we need to tell each other that we're that you're
-
doing a good job because all parents are trying.
-
And sometimes when you're having a rough day, even with typical
-
children, you kind of just need to hear it's OK and you're doing
-
a good job. Well it's so funny we we love
-
there's ATV show called Bluey. I don't know if you guys have
-
watched it or not, but. It's a lot.
-
You have not. No, I said a lot.
-
Oh. Yeah, it was a great show.
-
I watched. I watched it even after Braden's
-
left the room. And I'll just, I don't even, you
-
know, but there's one episode in there where the mom is
-
struggling hard with her kid not being on the same level as the
-
other kids. And so the whole episode is
-
centered about the mom just struggling with that.
-
And then the final scene, another mom just comes over and
-
they they have a little conversation and then the scene
-
centers on the other mom. She's just like, she just stops.
-
She goes, hey, you're doing great and the the the mom and
-
the show will start to tear up and cry.
-
But and I do too. It's so funny because Brooke
-
will watch that and she'll watch that scene.
-
It'll immediately get her. And so now all the time, if I,
-
if she's ever like stressed out with Brayden or anything I like,
-
I can just pull up the little video of the of the bluey thing
-
and just be like, I'll watch this real quick and it'll get
-
her every single time. Because it just, it just means
-
so much. Yeah.
-
To have somebody say, hey, you're, you're doing a good job.
-
You're here. You made it to church with your
-
children. That is, That is what God
-
expects of us, really, to raise up a child and the way they
-
should go. So that's awesome.
-
What advice can we give to Sunday school teachers and
-
teachers in general? When a child may come in that is
-
that way on and how to do. I don't want to say deal with
-
them because it just sounds harsh, but grow with them make.
-
Work with them. Work with them.
-
What's what's some advice we can get for for the teachers who are
-
involved with this? Oh, is this coming to me?
-
Yeah. Well, like I said, I love that
-
the ABLE program, there's all kinds of things on there, but
-
sometimes just doing your homework about we are blessed
-
here once again. I know that the Silas's who used
-
to be over the children's Tracy Silas was very familiar and
-
worked well in that environment. And now with brother David and
-
sister Holly, Holly is amazing, amazing.
-
I mean, they, they work at the camps.
-
And so I, I think just knowing you educate yourself, being a
-
Sunday school teacher may not require your bachelor's degree
-
or your master's degree or things like that in education,
-
but you can still get that education.
-
Study it. I mean, I started out just
-
taking a few classes. Make yourself a known and then
-
just be our pastor's favorite word fluid.
-
That's just the most important thing in in my mind is just to
-
to go with it. If they're struggling to come
-
into the classroom because it seems like there's a lot of
-
extra kids in there. The other classroom is open, but
-
if they're more comfortable there, they can come in there.
-
Just, you know, roll with it And is my opinion.
-
I don't know what you guys, what makes it easier for you and
-
you're dropping them off or picking them up.
-
For us, Finn is very excited to go, so it's not very hard to
-
drop him off, but I know that sometimes he has some struggles
-
inside the classroom. I would say that if you ever, as
-
a semi school teacher, notice that a child is struggling with
-
certain things, it's never wrong to ask the parent.
-
Like what can we do a little bit to help them in here?
-
Like what helps or something even in school, that's kind of
-
what we're going through right now is trying to figure out what
-
helps Finn. Because each child is going to
-
have a little bit of different needs, especially in the
-
classroom or even Sunday school classroom setting.
-
But also just knowing that sometimes if they're getting
-
frustrated about something, it may not necessarily be exactly
-
what it looks like. Because sometimes especially
-
children on the spectrum get frustrated about something
-
small. But to them, it's very big.
-
And the way to approach it can sometimes be differently because
-
if they make, if you make them feel like it's not a big deal
-
because to them it is, that's very frustrating to them.
-
So I would just say you kind of got to take it by the child and
-
what's happening. And some children do better than
-
others in the classroom, but also just know if they're not
-
good at sharing or impulse control is a little bit of a
-
problem. Sometimes you just have to go
-
about it a little differently. Or like Finn, if he really wants
-
to tell you something, and I know it's very inconvenient
-
sometimes, but at least address him and say I will answer you in
-
just a minute. Because if not, he will just
-
continue because he feels like it's very important.
-
Even if it's to tell you that he ate a red candy yesterday, to
-
him it's important. And I feel like it's important
-
for us to make our children know that they are important, that's
-
instilling confidence in them, and that will help.
-
Life and that could be for any child, yes, any any child wants
-
if you know to be recognized or noticed.
-
Feel heard? Yeah, we also.
-
Yeah, and that just helps with any child's confidence too.
-
And that helps with their self esteem which will make them want
-
to come more as well, even any child really.
-
And they may have something to contribute.
-
Yeah. I mean, you know, the thought
-
that God gave them could be the thought that adds to your Sunday
-
school lesson. And even if you don't think the
-
children are listening, Finn can tell me every single Sunday
-
school lesson he has had, OK? There you go.
-
He he knows a lot of Bible stories for sure.
-
That's just, that's just an example of the brilliance that
-
they can have, you know, to remember that kind of stuff.
-
The details never, I can't remember that kind of stuff.
-
You know what I'm saying? Like.
-
I don't know, John. You do pretty good.
-
I think you're. I think you're like.
-
I said if I got tested, I feel like I would be there too.
-
Like I recognize it. I'm like, yeah, I got an issue.
-
I got a problem. Like I am that picky person with
-
textures. I'm the picky person with smell.
-
Certain smells. Just I can't do it, you know,
-
noises, certain noises, I can't do it.
-
Like that's why I guess that's why it's so easy for me to
-
understand others who have that because it's like I kind of do
-
to an extent. So you know, that's why it's
-
never, I just never understood why some people get reclusive
-
when the topic comes out because to me, I just, I never saw there
-
being is something that's wrong, something that's negative.
-
I've never looked at it that way personally growing up.
-
Maybe it's because the way mom raised me, but.
-
Because Mom was. Yeah, that's why, like I said,
-
that's another reason why I just want to get it out there and why
-
I felt like this would be a really good thing to talk about
-
because so many people get that way.
-
And maybe if you hear like, Oh no, other people have gone
-
through the same thing, other people see it.
-
It's it's nothing that you're being judged for.
-
There's nothing wrong with it. It's just, it's just something
-
that's a different color on the rainbow than what you're used to
-
seeing. And it's not necessarily a bad
-
color. All colors together make a a
-
picture. If you only ever have one color,
-
you're going to have a very boring, boring painting.
-
You know what I mean? So.
-
That's why I don't like the word normal, because who gets to
-
judge what that is? You can't.
-
So there is no normal. There's me, there's you, there's
-
Justin, there's Brittany, there's Finn and others.
-
So yeah. Yeah, and you know, parenting.
-
Parenting is hard enough. Yes, it is.
-
And as I said earlier, you're trying to, you know, raise up
-
good people, take kids and turn them into responsible citizens.
-
And. We're not raising children,
-
we're raising adults. Yeah, exactly.
-
And that's tough enough. And there's so many different
-
opinions on, you know, this, you know, discipline your children,
-
you know, correction, all these things.
-
I mean, it's just everyone has their own opinion, which is
-
fine, but then you, you throw in that, that extra layer of, you
-
know, yeah, another challenge, autism, whatever it might be,
-
the disability, you know, that that adds a whole new level to
-
it. And so as parents, I don't know
-
about you guys that feel like a lot of times you're, you're
-
tough on yourself. I should have done this
-
differently. I should have said this, you
-
know, differently or overreacted, you know, this
-
time. And so you kind of go around
-
beating yourself up and then, you know, you have another,
-
another challenge that we were like we were talking about here.
-
So it's it's good to kind of remember that you're doing the
-
best you can. And so that's.
-
God's grace. Yeah.
-
And so I would as as you said earlier, Brittany, telling a
-
parent they've done a good job today.
-
Any parents listening to this right now?
-
Are you doing a good job? Keep up the good work.
-
Exactly as a grandmother and what we say that our our
-
grandchildren come along and we spoil them in a totally
-
different way than we did our kids.
-
And you're the kids will say you didn't let me get away with
-
that. You didn't let me do that.
-
You know what, you know what? I remember all of that.
-
Now I know what not to do. You know, I've been there, done
-
that. Now this little guy is going to
-
learn. I'm going to learn from all my
-
things that I wish I could change for him.
-
It's not that he's getting away with what you didn't get away
-
with, you know? I got away with a lot of stuff
-
though. So it was pretty good, I would
-
say to to parents who have children and not just children
-
in different situations, but there are times when you you
-
want to go to the altar or you want to go have some time.
-
Don't neglect the fact that you have a family here.
-
And I want to make sure that you know, hey, I can come sit with
-
Finn. I I don't have a problem coming
-
and sitting with Finn and Oliver.
-
If you want to have a moment, you know what I'm saying?
-
I think that's another thing that we can all learn to do to
-
cover y'all. So you can have mommy daddy time
-
with the Lord. That's another level of ultra
-
working, right? Yeah, whole another level.
-
We can do it. You know, convict somebody today
-
or. Whatever that comes out, hey,
-
I'm just saying. Got a great idea here, Yeah.
-
I mean, I, Brayden's still young, but I tell you, the
-
hardest thing I think as a dad is when you look back and you
-
think, oh, did I? Did I overreact?
-
Was, I mean, did he did me trying to be disciplinary or
-
whatever the case may be? Did he take that as I'm the bad
-
guy? And I just, you know, I that's a
-
hard thing that I've learned just dealing with.
-
I can't imagine how it would be if you get to a point where they
-
are really thinking those things.
-
And and for parents or for us who may not recognize that our
-
child may be a different, like they approach it differently and
-
you don't realize that. Yeah, they really could look at
-
some things as being, you know what I mean?
-
Like if to you, it's something that is little or should be
-
minutered, but to them it is big.
-
And you didn't know that you overreacted.
-
But to them, you just man, you just went scorched earth on them
-
and that, you know what I mean? Like that would just be a a
-
tough thing because all you really do want is just the best
-
for them. So yeah, that that that kind of
-
hits home a little bit for me, just myself, and I'm Brayden.
-
I don't even know if he's at that point, you know what I
-
mean? So he's definitely got some of
-
my ticks, I will say that. I would say with parenting in
-
general though, as long as you, we're all going to have those
-
things that we overreact on. We all have bad days, adults,
-
children, everybody, but it's what you do afterwards that
-
really counts. I think we should have
-
communication and we should always say sorry to our
-
children. They need to know that we're
-
coming from a place of love, that we love them and that's why
-
we're not letting them behave a certain way.
-
But they also need to know that there are certain ways we should
-
act and shouldn't act in those things.
-
And when we overreact, we should also say sorry.
-
Exactly. I agree.
-
I've done it before. I've had to say it to a child,
-
you know, when I thought it was this, but it was this.
-
And then to go to them and say, I'm sorry you, you were right
-
and Miss Cheryl was wrong and I'm sorry for that, you know, So
-
I, I agree with you 100%. And that's teaching them as well
-
as teaching them how you should respond, You know, when you make
-
a mistake, especially as parents and as adults, we, you know, be
-
prideful, you know, don't want to admit that.
-
But I think if we start start them out early saying hey, it's
-
OK to say sorry and you should, they will, they will definitely
-
have better a better adults. Right.
-
One more area of talking in this that I don't know if you guys
-
have even you may not even be able to comment on it at all.
-
But I've I've seen it before where having a child who is on
-
the spectrum can cause a lot of stress on parents and can even
-
put a nail or a wedge in between both of the parents.
-
Like you can get stressed out over the child cause you to get
-
stressed out with each other, which can lead to some fights,
-
some issues, things like that, Disagreements, disagreements.
-
Hopefully I'm not poking the wrong buttons.
-
But if I had to ask, like maybe you haven't gone through it,
-
maybe you're going through it, I don't know.
-
But if you could from your experience in those situations,
-
if you've had any, what kind of advice could you give to other
-
parents where they're struggling with what's more important?
-
And this is terrible to say it this way, but what's how to
-
prioritize like your child, also your marriage, making sure that
-
you're not letting the child and their, I don't want to say
-
difficulties, but their their types get in the way of your
-
marriage where you're stressing out over each other.
-
And and then it can cause like I've seen so many where it
-
causes two people to split up just because of the struggle
-
with the kid. What advice could you give to
-
parents who have that and maybe going through something like
-
that? How do you make it work as a
-
marriage? Yeah, I will say sometimes it
-
does get very difficult because you're spending all your time
-
and sometimes all your energy just trying to keep your child
-
alive and happy, honestly. And that can put a strain on
-
your marriage when you don't have enough time for each other
-
or you're both exhausted because you've been having to discipline
-
all day long. I will say that you have to make
-
time for each other, even if that is just a little bit just.
-
And I have learned because sometimes since I work night
-
shows, sometimes making time for each other is difficult.
-
But that will drive a wedge in between you if you don't make
-
any time for each other. And you have to think about the
-
fact that two people sometimes parent differently as well and
-
have different ideas on discipline.
-
And I think it's very good to talk about with each other so
-
you're not just down each other's throat all the time.
-
Like, oh, well, I didn't like how you did that.
-
I think communication is the key.
-
And we don't have it all figured out, obviously, But yeah.
-
And finding someone that you can trust to even watch your kid for
-
one hour helps. I know that not everybody has
-
that. And I mean, as a church family,
-
we need to be more open to that and helping the people in our
-
church that don't have that so that they can prioritize their
-
marriage as well. Because we have to be there for
-
each other for the rest of our lives.
-
Like eventually we hope that our children will grow up and be
-
able to take care of themselves and we're still going to be left
-
with each other. So we have to, we have to, you
-
know, keep putting energy into it even when we, I mean, even
-
when you don't feel like it sometimes.
-
Yeah, you know, I was going to say ask me in 11 years and I'll
-
tell you. Well, we have made it 10 years,
-
OK. Well, I mean, I mean, when Pig
-
gets old enough to be, you know, responsible for himself.
-
Ask me then, and then I'll tell you how to raise it.
-
Yeah, I do. You're right.
-
It takes a village. It really does.
-
There's a reason that's a saying, and it's so important.
-
And I agree. That's why I try and tell.
-
I have friends who and they may even be a single parent in the
-
situation like you have to take care of you because you can't
-
take care of him if you're not taking care of you.
-
So if you need somebody for an hour, 2 hours, I mean, even my
-
son will call and say, Hey, we need, we need time, you know, to
-
get out and be a couple. It's that's not just for kit
-
parents who are in y'all situation.
-
That's for all parents, you know, and I hope everybody knows
-
if you get to that point and you just need it, give me a call and
-
say, hey, you know, I don't. I don't care what, Fenn will
-
have fun at my house. I'm afraid for Fenn to go
-
anybody's house. We're afraid that everything
-
will be broken. Sometimes we get terrified of
-
going to other people's houses. That's a problem.
-
Come to mind, Mine's baby proofed pretty much.
-
It looks like a daycare for real now, yeah.
-
There's nothing there that's not broken that Braden hasn't found
-
a way to. I mean, my kid will baby, baby
-
proof a house pretty quick. If there's something that needs
-
to be fixed or dressed, he'll figure it out real quickly.
-
And you'll find out, especially when he's what, 20 feet up the
-
steps and you realize the gates not there.
-
You walk in the room and there's three different puzzles that are
-
1000 pieces each all mixed together.
-
And he's let's do a puzzle. Make it real challenging.
-
It's all good. Yeah, it's.
-
My life, yeah, one of those challenges for me along the same
-
lines we're talking about with with then, you know, he's
-
autistic, but it's it's not the non verbal, it's he copes or he
-
what's the word? He's hyper verbal actually.
-
And so I like to say that he narrates his life.
-
Literally. Actually, literally, he does
-
everything. Yeah.
-
And so when I come home and brain is the same, it's I mean,
-
it's just non-stop. And you know, you worked 8910
-
hour days, you know, and you just won't, you know, peace and
-
quiet. You just want to relax.
-
You just want to, you know, decompress, decompress.
-
Thank you. And but with the child that's
-
talking 90 miles an hour, it's hard to decompress.
-
Breathe. Yeah, exactly.
-
So it's, it's definitely challenging and you know, and
-
every parent knows that that that works and, and, and and has
-
a family that's tough enough. But yeah, when you, when you,
-
and in this case, when he wants to tell you everything and
-
narrate everything and it's the most important thing.
-
There's no, there's, there's nothing else that's more
-
important than what he has to say at that moment.
-
And so, yeah. And, and he doesn't pick up on,
-
you know, social cues. He doesn't, doesn't know that
-
you don't want to hear it or that that you've heard enough
-
and that you're ready to now he's going to tell you.
-
He's just going to keep talking. That's like my son in personal
-
space. He does not understand that, you
-
know, he does not need to get this close just to talk to you.
-
I mean, like Brayden, Brayden's that way.
-
But like when he wants to tell you something, he has to be
-
right in your face, eye to eye. You got to be able to smell.
-
He wants to smell your breath. He wants to, you know, if you're
-
not looking eye to eye with him, you're not listening.
-
I don't know if he feels like he's got to tell you even though
-
he's talking. I know he, he, he can't, he gets
-
going and it's just, I mean. He's talking.
-
His tongues, you know what I mean?
-
So, but he's in your face and he's got to tell you and he's
-
got to sit on your lap. Sometimes he's like, he's got to
-
hold your arms. It's like.
-
Hold your face. Yeah, yeah.
-
He'll do that too, both cheeks and he's just like I got to tell
-
you this. Right now.
-
Finn does that a lot, except he will actually take.
-
If you're not paying attention, he will take his hand and move
-
your face to look at you. He wants you to be looking at
-
him like you need to pay attention.
-
And he's not trying to be rude, that's just I don't if you know
-
anything about autism. When Finn first started telling
-
us he wanted things, he wouldn't ask you for what he wanted.
-
He would take you to what he wanted and just expect you to
-
know what he wanted. So now he kind of does the same
-
with his with your face pretty much and gets very close to you
-
as well. He has to know that you're
-
listening. So just so you know, if Finn is
-
ever in his in your personal space, he just doesn't
-
understand, OK? He's not trying to be mean.
-
He really just. Doesn't understand that could be
-
said of any other child as well. You're being very open with us
-
about Finn. But there are other children in
-
our congregation. Maybe they're visiting or maybe
-
they're part of our normal congregation.
-
That may be the same way to just extend that grace and
-
understanding. I think it's my desire.
-
I want them to all feel loved. And every kids different.
-
One kid may be their miscue for social cues may be getting too
-
close. Another kid may be that you
-
can't get within a certain distance.
-
This is my space. If you get any closer.
-
This is that's why I like I always in like freaking out like
-
with Braden, because I'm like he he's the type that again, there
-
is no there is no personal space.
-
You know, I'm going to be right here close up on you.
-
And that's just the way that is. But then if he gets around a kid
-
who has to have at least a three foot barrier around them, and
-
Brayden doesn't understand that, then that kids freaking out and
-
then Brayden starts freaking out and both of them are like, it's
-
like positive and negative, like what's what's going on?
-
So I, I feel that I'm like, huh, I just get jump ahead.
-
Yeah, I'm like, look, he he's not trying to purposely trigger
-
your child. He just doesn't, you know?
-
That's weird. Well, yeah, I think that's hard
-
with Finn too, is because he wants to be get close to you,
-
but he doesn't want you necessarily to get close to him.
-
It has to be like on his terms. And the hand flapping, I think
-
sometimes gets people like, especially when we're out places
-
because people like, don't understand.
-
And they'll like, be like, oh, he's going to hurt my child or
-
something because he does get very excited and doesn't have
-
spatial awareness. And I think we just all should
-
have an open mind. And of course, we don't want him
-
to hurt anyone else's child. But also I just think that
-
sometimes society as a whole looks at it like, oh, like, your
-
child's weird. Why are you doing that?
-
And we need to be more open and make children feel more OK to be
-
themselves. Well, most kids are weird,
-
right? I mean, I'm weird so I'm going
-
to say. We live in a world full of yeah.
-
I was talking about praise and worship and and and and then
-
when the other other children got baptized last Sunday, you
-
know, they brought the Sunday school kids up there and watch
-
what I think it's great. Well, you know, the music was
-
bumping and when the sun school teachers he was was worshipping
-
with fan because fan was jumping up and down.
-
Hey, that's fine. Like, you know, I was up there
-
with them and so I was just observing and you know, hey, I
-
let him, you know, let him go. But then he started doing hand
-
stands off the steps of the platforms.
-
I had to intervene. I fell.
-
Like we're getting a little carried away.
-
Finn also did say this morning he knows how he can and can't
-
dance anymore so. Yeah, I was trying to teach.
-
Him a little they can't and they can, you know, but.
-
He said I learned not how not to dance when Daddy got me off.
-
True, true. So you mentioned for him, it was
-
it was hand flapping, how he kind of like smells.
-
Were there any other kind of cues that he might have given
-
off that now that you look back, it's like, oh, that was that was
-
something I could have watched for.
-
What are some clues that for parents who maybe they they,
-
they're at that point like is my kid, you know, what are some
-
clues or do you know of to look for?
-
Yeah, for Finn it was just loud noises when he should have been
-
past that stage of being scared of everything, like flushing
-
toilets and hand dryers and the blender.
-
And he's to the point where he will not to be TMI, but he will
-
literally pee on himself if someone flushes the toilet while
-
he's going to the bathroom or if it's a self flushing toilet
-
because he has to cover his ears.
-
So he literally cannot stand it. I know that all some children do
-
certain skills and then stop doing those skills.
-
The pediatrician supposed to do like a especially at 18 months I
-
think or two years a full screening.
-
But like for Finn, I would also tell parents don't answer the
-
questions of the pediatrician like you think they can do.
-
You need to answer as they are doing it because we thought Finn
-
could do more things and then we realized, oh wait, he really
-
can't do that. Like eat with a fork or a spoon
-
when he was younger and stuff like that.
-
Any sensory avoiding and they can also be sensory seekers,
-
which means they like to jump and crash and they like to feel
-
pressure. Those are all like the sensory
-
system not being what's typical I guess.
-
Regulated. Yeah.
-
Yeah. And also, you know, we with him
-
too, he was because he was verbal and he still is lost.
-
He likes to talk a lot, but he was, he learned words pretty
-
quickly. But as we got, as he got older,
-
we hadn't taken the speech therapy for quite a few years
-
because he wasn't saying certain words correctly were certain
-
sounds. Certainly, you know, a vowel
-
sounds and, and then the fine motor skills as you were talking
-
about, you know, eating with a fork and, and, and, and riding.
-
He even even now, you know, he still struggles with with riding
-
and he was also seeing signs of dyslexia as well.
-
Yeah, he might have some kind of visual processing going on
-
because he's having a very hard time when he looks at pages of
-
things, where to start even on the page.
-
But. And I was just.
-
You know, and I think the more you do at home, the more you let
-
them draw, let them write is a good way of picking my picking
-
up on it earlier. That's because, you know, we
-
thought, hey, you know, he's made all his.
-
He met all his milestones like he was supposed to develop his
-
development, development milestones.
-
He he met those that they do at the pediatrician's office.
-
But as he got a little older and, you know, those milestones
-
became quote, UN quote more harder, you know, then that's
-
when he began to. He.
-
Also had a if you ever talk to Finn, you'll realize he does not
-
really do back and forth conversation very well.
-
He is going to tell you what he wants to tell you, and then he
-
kind of checks out. Like it's.
-
That's very common with autistic children is they have something
-
that they want to say, but they don't have back and forth
-
conversation very, very well because it's on their mind.
-
They say it and then that's it. That's it.
-
Yeah, they move on. So the biggest thing it sounds
-
like really off the RIP is being open to this possibility that
-
your child may be like, they may be this way, not just this, you
-
know, I can't think of in a way of being in denial of no, this
-
isn't my kid. They don't struggle with this,
-
even though they might. And, and just, you know, for a
-
parent, if you, if you're so hyper focused on being in denial
-
of what your kid is or isn't in a way, you're, you're possibly
-
denying your child the best care that they might need.
-
So it's better for them for you to be open and accepting.
-
And again, not thinking of it as this taboo.
-
You know, I almost likened it to what, you know, like if you, if
-
you read the Bible and you're looking at how they would look
-
at people who were blind or deaf, you know, they would all
-
like the story where Jesus healed the blind man and they
-
go, well, what sin did you commit or what did you do wrong
-
to be this way? Like there's nothing wrong.
-
It's just this was an opportunity for God to be able
-
to show himself and like, so it sounds like to me as a parent,
-
it's just, it's just being open to it.
-
Like there's nothing wrong. It's just different and, and,
-
and not being in denial, especially when you go to the
-
possibility of getting tested or when you go to the pediatrician
-
or anything like that. Just kid may be that way, may
-
not be that way. All kids are different.
-
None of them are normal. Yours just might have a little
-
bit more of an extra layer added on a personality and just not
-
being in just again, not denying or trying to lie about where
-
they are. I think that's what Brittany
-
said that struck me, she said be honest.
-
Just be honest. Honesty is going to help with
-
everything. And I think just also knowing
-
that if as a parent, you feel like something's off, it
-
probably is. And knowing like, I know you're
-
talking about denial, but also I think sometimes as parents, we
-
get caught up like, Oh, well, am I thinking too far into this?
-
But I think as parents, it's, it's OK for us to advocate for
-
our child. And if we think something's off,
-
to be like, hey, like, can we just pursue this a little bit
-
further and just have an open mind to that?
-
It may be that they need a little extra help.
-
It may not, but it's always good to know.
-
Fight for them. Fight for them.
-
Absolutely so. I think you've kind of given
-
your opinion, but I kind of want to highlight on this again,
-
your, your instincts as a parent to your child are going to be
-
more in tune. And I hope I don't offend
-
anybody, but they're going to be more in tune than your parents
-
opinion of your child. The grandparents will say that
-
or the friends or the aunt or the uncle.
-
I've heard, and I've seen a lot where mom and dad might think
-
one way, like, hey, we probably need to take this step, but then
-
the grandparent comes in and says, no, no, no, no, no, that's
-
we don't, you don't do that or whatever the case is.
-
And they almost kind of convince you that your instincts are
-
wrong. Like I've seen that.
-
So I, I feel like you've already kind of said like, no go based
-
on your instincts, but like how important is that in itself to
-
to say, hey, look, your instincts are they're there for
-
a reason. Well, yeah, I mean with Finn,
-
I'll just say my family wasn't really sure they they were kind
-
of the ones that kept saying like, oh, he's just an A typical
-
boy, like he's fine. There's there's nothing going
-
on. So I think sometimes as a
-
parent, you just have to not listen to that external factors,
-
it's hard sometimes, especially people that took care of you.
-
But as a parent, you know your child best, you've been with
-
them, you know them even better than the psychologist that maybe
-
do the test. And that's why they always ask
-
for you to fill out parent questionnaires.
-
Yeah. Well, I'm not going to hold you
-
too much longer. Is there any more advice or
-
anything else you would you would say to other parents who
-
may be going through what you've gone through in any kind of way?
-
Just keep going and. You know, going back to your
-
last question, yeah, you have to advocate for them.
-
I mean, you are the first line of defense.
-
And so that's the most important thing is, is being their voice,
-
even when you don't know exactly how that's going to come out or
-
how that's going to sound. But just just seeking answers
-
and, and don't be afraid to reach out for help because we
-
know we're all struggling in our own way.
-
So yeah, just be, you know, be their biggest advocate.
-
I just want to say that I think you guys are awesome and I am so
-
impressed with how you have been.
-
I I was overwhelmed with the effort and thought that you put
-
a defend from the very beginning.
-
I was blessed to kind of come in on it when he was thinking about
-
preschool. And I was just so touched by you
-
as a mom going so deep within you to fight for him.
-
And I could cry right now, but I think you guys are amazing and I
-
think God puts very special parents with kids that need that
-
extra hug. So thank you, prayers for you
-
and support for y'all. Yeah, anyone's welcome to as
-
Brittany has already voiced, anyone's welcome to reach out to
-
us. Yeah, I mean, and I want to
-
thank you as well for coming on and being open with me.
-
Like I said, when when this, I think I was getting the same
-
kind of thought for this kind of style of an episode the same
-
time that she was in like in my head, it was just one of those
-
things. I remember the conversation that
-
I was talking to, it was with Brooke and mom.
-
We were all at the table and they're saying, like, I would
-
love to do a podcast episode, but make this the topic because
-
it's such a taboo topic and I think it needs to be talked
-
about. And I think it's something that
-
is important. And I don't I forget if it was
-
Brooke or mom or at the same time they were like, well, you
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know who you need to get on, You know who you talk to.
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I told her I was like, I was like, who?
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Because anybody that I've ever thought of would like kind of, I
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don't want to say like ask them like, Hey, can you talk about
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this? Because what if they get
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offended or they get angry and they were like, no, you need to
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go talk to Brittany and Justin because they're open about it.
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They're they're. The people I told them I was
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like, I would love for you to do a podcast on that because I
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think it is that important and I'll tell you who is a fighter
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for it. Well, and I think if we're not
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open about it, like we haven't ever specifically told Finn that
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he has autism, but we're very open with him that his thinking
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may be a little different than others because we don't want
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someone else telling him that. We want him to know that it's
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OK. So we do try to be open with it
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because we want him to feel like maybe I do think a little bit
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differently, but that's OK. Yeah, that's it.
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It makes it's it's awesome. It's really awesome to see.
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And like I said, I just thought it was just funny like those
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that Brooke and mom were both on the same page and I was like, I
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kind of want to do this. And they were like Brittany
-
breaking ship, get Brittany in there.
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And I was like, OK, well, if if she's open to it, like it was
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really touchy. I was like, man, who am I going
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to talk to? Who can I ask or approach about
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it that won't get offended because it has nothing to do
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with like, I don't know, being judged.
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It's just, this is something that I think is important and
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needs to be talked about. Who's willing to talk about it.
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So I, I want to thank you for coming on and for, and for being
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open with us and, and, and being specific.
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I mean, a lot of these things can be down, down deep and, and,
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and close to the heart. And hopefully somebody takes
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this and learns from it and, and takes the advice and says, well,
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you know, my kid is not, they're different.
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They're not different in a bad way.
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They're. Different.
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Yeah, we're just all different colors of the same picture.
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Yes, I believe now more than ever this is a ministry that God
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wants to have in the church and I think you're propellers of
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that and and let God use you for that ministry because it is a
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big ministry. There are a lot of parents that
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are not going to church because of their children and that's not
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OK. God said not to deny anybody,
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let them all come. So I do believe that you will be
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a great propeller for this ministry.