Sermon
Imago Dei - Panel on Disability
Publisher transcript
Transcript
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As they're getting comfortable, I'll read through
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an intro that we're going to have for each one
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of our panels. So I'll read that and then we'll
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get started. Like I said, good morning. My name
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is Scott. We're in the third week of our Imago
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Dei series. As our panelists come up and get
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settled in, we have a primer we want to read.
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at the top of each of our panel discussions is
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a way of setting the stage. The scriptures tell
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us that from the beginning, we were created in
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the image of God, and so we bear the likeness
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of our creator, every single one of us. This
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is why for many years now, our church website
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has said, we welcome all persons and have no
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leadership limits based on race, gender, identity,
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sexual orientation, or physical ability. for
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those who confess Jesus Christ as Lord. The central
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standard is Jesus. But because of how the Bible
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has been interpreted over the centuries, the
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church has often implicitly and explicitly communicated
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that we do not all bear the image of God or belong
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equally. Women have been left out or excluded
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from leadership in the church historic. Gay,
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lesbian, trans, and queer folk have been promised
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they can belong so long as they fit in. People
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with differently abled bodies have often been
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excluded or treated less than because of their
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physical bodies. And non -white cultures and
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ethnic groups have often been treated like they're
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only here to help the quote -unquote real image
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bearers. It sounds ugly because it is. It doesn't
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sound like Jesus because it isn't. And so our
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panel discussions during the Imago Dei series
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are meant to be a kind of promise, not to perfection
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or utopia. And we aren't expecting full agreement
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for everyone in the room about everything. But
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these conversations are a kind of promise that
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we are working and learning to be a community
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that is safe. for people pushed to the margins,
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people of color, women, the disabled, and the
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LGBTQ plus person, because we are all created
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in the image of God, and no one should be left
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out. As we all discuss what it means for us to
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bear the image of God in the church and in the
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world, and for the church to be a safe place
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for us to grow in the likeness of Jesus, and
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the fullness of what God has created us to be,
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will you please welcome our panel for today?
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I'm going to start all the way down to the end
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with you, Dave, and then Kathy and Liam will
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go to you. If each of you would introduce yourselves
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and your friends and why you're participating
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in this panel, that would be great. So this is
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Sweetie Paw, when you guys recognize and know
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her. And my name's Dave Hodge. I'm here kind
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of just as her dad and to talk about it from
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a parent's perspective. And Sweetie will interject
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with laughs and probably chomps throughout the
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whole entire thing. So do you want to say anything?
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I'm Kathy Webb. I am here because I have several
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different invisible or non -apparent disabilities.
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I'm William. You all probably know me as Liam.
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And what did I need to say? I've got some physical
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disabilities in my arm. And then like my back
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too. So yeah. All right. Thank you. And again,
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my name is Scott. I had a spinal cord injury
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about 10 years ago. So this year is my anniversary
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10 year of being in a chair. And then I also
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am the parent of a child with a disability. Our
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daughter that we were able to adopt in November,
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but have been caring for since birth and will
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be three this month has Rett syndrome. which
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affects her speech and her physical abilities
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as well. How did you initially get connected
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to God and church? And this time, Liam, if I
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can start with you, you can share, and then we'll
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go down and through. I mean, my dad is Pastor
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Greg, so I... Yeah, I grew up here pretty much.
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I've always known, like God and stuff. So yeah,
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that's all. Yeah, so my parents come from two
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very different Christian faith traditions. So
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they got married and didn't know what to do or
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where to go. So they didn't go anywhere. And
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then I was invited to a vacation Bible school
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when I was six. And we started attending that
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church afterwards. Yeah, and I was raised by
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both my parents from a very young age going to
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church. They always taught our kids clubs and
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Sunday school class and was a part of a program
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that did verse memorization as a kid, like an
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Awanas program. And I remember being seven years
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old and just asking my mom what a verse meant
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and how to explain it to me and accept your Christ
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at that point. And then it has always been a
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place of safety in my life and community the
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church has just kind of. Moving around a lot
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and getting involved in ministry. Also went on
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to college and got a degree in ministry. Have
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been a part of a lot of nonprofits and stuff.
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And then Sweetie came into our care and has been
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with us for going on six years almost now. So
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yeah, so she's just kind of been a part of our
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lives since then. Awesome. And for me, similar
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to Liam, I'm a pastor's kid. So I was at church
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every Sunday for as long as I can remember. whether
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I wanted to be there or not, and it stuck. I
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like being there, so I'm still there and still
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a part. I'll start with you again, Liam. Have
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you found it difficult or natural to accept how
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you were made or your current physicality? I
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feel like since... I mean, like, yeah, I guess
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I've been this way for the majority of my life.
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So if it is natural, it's just because it's,
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like, most of what I've known, I guess. So, yeah,
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I guess I would say, like, I've come natural
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to it. So you've gotten comfortable with, you
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know, the body that you have. Yeah, I make do
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with it. Both. There are some parts of me that
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are easier than others. So I think, like, I have
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a chronic pain disability, amongst some other
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things, and that one tends to be weirdly easier
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to deal with with other people, but not as easy
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with myself. So it just depends on the circumstances
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and with whom I'm speaking as to whether or not
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certain parts of me are easier or more difficult.
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Yeah, and so for Sweetie, she's nonverbal. has
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some developmental delay, has white matter changes.
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And so, you know, asking her questions, sweetie,
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do you love being sweetie? She's very happy all
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the time. This is her demeanor, who she is. From
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our parents' perspective, I mean, we have been
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all in with her from the very beginning in life.
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We've learned a lot and grown a lot, especially
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around the ideas of faith. Just processing her
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and who she is through faith. And so I think
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we're at a very accepting place in our lives
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with her and who she is. And we're always learning.
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I mean, she's new every day. Yeah, thank you.
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For me, it really depends on the day and situation.
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There's days that I wake up and think, you know,
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hey, this is the situation I'm in. It's okay.
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I'm so grateful for the things I'm able to do
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and the supports that I have. And then there's
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mornings I wake up and feel like this is just
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too much work. This is too frustrating and feel
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very frustrated. So it can go back and forth
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for me, definitely. What do you think God feels
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about you? And has that changed over time? I
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felt some acceptance. from the beginning of my
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disability because it happened very suddenly
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and it just became you know at the time I was
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28 so I had some maturity and age and so it just
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happened and you know I just came to the conclusion
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pretty quickly of I had a relationship with God
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this has happened I'll continue to have relationship
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with God and so accepting that He understood
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and accepted me, came pretty naturally. And I'll
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remind our panelists, and just so you know, that
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all of them know that if there's a question that
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they don't really have anything to say about
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or don't want to speak to, then they're welcome
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to just go ahead and say that. So not everybody
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will have something to add to every question.
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Liam, do you have anything you'd like to share
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on this one? I just think he cares about me just
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as much as everybody else. So yeah, that's all.
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Ditto. Well, I'll talk a little bit about this.
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Is that okay? I'm sorry. So yeah, so with Sweetie,
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this has been a huge change for me personally
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and my thoughts of understanding religion and
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Christianity and faith and all those type of
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things. With her being nonverbal, I think a lot
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of people... First of all, I'll say this. I think
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a lot of people... I mean, Sweden's very complex.
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And from the first view of her, I think the judgments
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of, well, you know, even her schools would say
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that when she was first tested that she ranks
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around three or four years old. But she also
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speaks another language. She came here speaking
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another language. English was not her first language.
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So the fact that she has... and understands English,
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and as we talk to her and can communicate in
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some phrases and respond to those things with
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her feelings and match up those feelings with
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her words when she does talk, simply saying I
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love you or I eat or whatever she says, shows
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to me that she has far more capabilities of understanding
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than what she is given. And so when it comes
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to faith and understanding, though, she also
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is not able to respond. in the typical ways that
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we have laid out through evangelical Christianity,
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of that we expect a person to respond, to accept
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Jesus as their personal Savior, and say the prayer,
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and spend their life with devotion and prayer,
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and reading the Bible and Scripture, and all
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those type of things. And so that has to then
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begin to shape, for me, differently. Like, how
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does God view her? Perfectly. And so for me,
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that is the beginning point for me of understanding
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faith and understanding when it comes to her
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that God looks at her perfectly. God's not expecting
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anything from her more. He just gets to enjoy
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her every single day. And I believe that deeply,
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just as much as we get to live and enjoy her
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every single day. And I have no expectations
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for her as a parent, as a father. I think it
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shaped a lot for me. It's changed a lot for me.
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It's continuing to change a lot for me and how
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I understand how God sees her and then how I'm
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able to relate that even to myself and to others
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about how really truly God sees us and understands
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us. And what are those steps that we have to
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take? And what does that look like? And I am
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still learning. I'm still growing. I don't sit
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here to say I'm an expert in this field. But
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I will say the experience of having Sweden in
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my life. has definitely began to shift in my
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mind and my heart and my understanding of how
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I see scripture and how I read scripture when
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it pertains to God's love for us, God's grace
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for us, what Jesus has done on the cross for
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us. Because if we truly believe it does not come
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from us earning those things or whatever that
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may look like. then I have to believe that for
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God and Jesus for her also. And so I believe
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Jesus deeply loves her, cares with her, interacts
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with her on a daily basis, lives with her, walks
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with her, laughs with her, speaks to her, shows
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up to her in dreams and ways that I don't understand
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because she is constantly filled with joy and
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laughter. And I wish, you know, more of my life
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reflected that of what Sweetie lives out every
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day. And with that, our next question is, is
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there a certain place you go in the scriptures
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that reminds you of that or causes you to think
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of that? Yeah, so like for me, like the beginning
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of the Sermon on the Mount, right, is like Jesus's
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first ministry. Understanding the idea that when
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Jesus goes, begins to speak, he has a plethora
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of crowds, like thousands of people are following
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him. before he ever opens his mouth. And those
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are people who are demon -possessed, who are
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sick, who have infirmities, who are coming to
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Jesus to be healed. And so they're all coming
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to Jesus, so Jesus heals them, and Jesus heals
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them, casts out demons, and does all of this,
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and then he sits down, and he begins to speak
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to his disciples and the crowd, and the first
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words that come out of his mouth is what we call
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the Beatitudes. which can be looked at a thousand
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different ways, but if you realize the first
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words out of his mouth is blessed. Blessed are
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those who are poor. Blessed are those who are
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persecuted. Blessed are those who are sick. Because,
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then he goes on to say, because they would see
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the kingdom of God, they would do all these things.
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Understanding that passage for me, knowing that
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the concept of that all these people who are
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coming to Jesus to be healed are people who have
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been told their whole entire lives and in that
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culture that they are cursed by God. In the biblical
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times, if you had any type of ailment, sickness,
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disability, injury, it's because you ticked off
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God, and God was punishing you, and then you
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were removed from your home. So you had to live
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outside of the city walls. You were cast out.
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You were seen as less. You were seen as unclean.
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So to have all these people who believe because
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of their infirmities, because of their disability,
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or whatever they had going on, by culture, by
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religion, that they were cursed, they come to
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Jesus and they get the complete opposite. A,
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they are freed of it. And then B, they're told
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they are blessed. That you were never cursed.
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That you have always been loved. That in God's
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eyes, you have always mattered. You have always
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been seen. So that for me is huge understanding
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to begin this journey of looking at. you know,
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and understanding sweetie through a life and
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eyes of her disabilities and needs. And then
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there's all kinds of stuff, right? Christ came
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to die on the cross, and he says, I came to give
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you life and life to the full. It's not an afterlife
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to the full. It's a life currently to the full.
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And so I believe that Christ died for my life
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to be full. I believe that sweetie also gets
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to have a full life because of that. Numerous
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passages. I mean, I could go on all day. with
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this, and I'll stop and pass it on. But I think
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our ideas of heaven, of getting to heaven, and
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we think the beauty that is heaven is there,
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and we want to get there, but that becomes like
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that escapism of, well, life is hard here, and
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so there it's going to be perfect. But then Jesus,
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again, like in his prayer, says, right, that
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we pray that his kingdom come, his will be done
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on earth, now, presently, just as it is in heaven.
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And so that we get to live in God's presence
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fully now on earth, just as we will one day in
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heaven. Like that again, to me, plays into the
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role of Sweetie's life, that she's living the
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fullness of Christ now in her earthly body as
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she will one day in heaven. So, so many things,
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I think, for me fall into that. Yeah, thank you.
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And to answer that question for myself and also
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connect with a couple of the things you said.
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My daughter is also nonverbal and has the most
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beautiful smile and the most beautiful laugh.
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And as I've met Sweetie and others, I have never
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doubted for a second whether Sweetie was loved
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by God fully. It is just so clear. But we often
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struggle with that for ourselves and others.
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Yeah. It can be a challenge for some of us that
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are, it's always tough to find words, but able
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-bodied or of normal mind. We can question decisions,
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different things. But we never question that
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for some of the more profoundly disabled. And
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I think one of the reasons that's significant
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is that doesn't come naturally. Throughout history,
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that hasn't been the case, that we look at people
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with more profound disabilities and say, wow,
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that person is really a sign of God's love and
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God's grace. And even those who don't recognize
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Jesus as God's son or scripture are still influenced
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in our culture by that belief. And everywhere
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I would go in the world, people wouldn't necessarily
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jump up and open a door for me or ask me if I
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needed help. There are lots of places that that
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might not be normal. For us, in our culture,
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it's pretty normal. But I very strongly believe
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that's because of the influence of, even when
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we don't realize it, of Christianity, meaning
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Jesus, and those teachings that you mentioned.
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And I'll pause there. That's a tough one to pause
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on. Liam, do you have anything to add about a
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certain place that you see in scriptures? I was
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thinking about it last night. And I went, I think
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it was Romans 8. And Paul was writing about,
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like, that we aren't from, like, this realm.
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It's our, like, spirits that matter. And he was
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just saying that, like, it doesn't matter, like,
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what you're capable of doing with your body.
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And it's like you need to just lead with your
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spirit. Awesome. Thank you. I'm going to take
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us to the Old Testament. So I love Ecclesiastes.
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I'm one of those weirdos. And Ecclesiastes 7
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.13 says, who can make straight what God has
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made crooked? And I just love that verse for
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several reasons. But, you know, God explicitly
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says that he is the one who creates disability.
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He told Moses this. He said, who makes man deaf?
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Who makes man blind? Moses was complaining because
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he didn't want to do what God told him to because
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he had a communication disability and he didn't
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know how he would go about doing that. And so
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God is like, I made you this way. But because
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you're uncomfortable with this, I will send your
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brother Aaron as an accommodation for you. Right.
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And so like there's this beautiful history throughout
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the Old Testament where God is like, I did this.
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And people are like, well, OK, then I guess I
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have to deal with it. And I think for me, like
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just recognizing the fact that like I'm not a
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mistake, like God didn't have an error in the
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pattern that he was using when he made people
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like that's just so powerful to me to think like.
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God did this for a reason, and I am this way
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for a reason, and I live my life different than
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a lot of other people, but that's by design.
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That does different things. It teaches different
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things. It allows me to learn different things
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than it would if I just, like, you know, fit
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them old people. Thank you. I'm going to move
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on to, have you ever felt othered by Christianity
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or the church? Because of your body and abilities.
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And I would just start with the really simple
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one of seating. I've been in churches where there
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wasn't anything available for persons that use
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a chair. And that can be tricky because it's
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like, wow, nobody thought of this. You know,
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nobody thought of the possibility of someone
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in a chair coming in. This is where sometimes
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people overcompensate. So they start removing
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a whole row of chairs. And I'm like, I just need
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a spot. I don't need you to rearrange the sanctuary.
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So that's just a little example of sometimes
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in church, and not just in church, but included
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in there where people might wrestle or church
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structures might wrestle to how to figure out
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how to handle disability. Kathy, do you have
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anything to mention that? And then I'll go Liam
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and then Dave and Sweetie. Sure. So constantly,
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not as much in some spaces as in others, but
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it's little things, right? Like, so sometimes
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my pain doesn't want me to stand up, but I am
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young. And so people are like, why aren't you
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standing up? Right. And then also sometimes when
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you sit and you can't see the screen, so you
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can't sing along. You literally can't see through
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the tall people standing in front of you. But
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also just little things like sometimes the songs
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that are chosen have lyrics in them that are
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just really hurtful. And there's just so many
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places where there could be more thought put
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into how we're thinking about and talking about
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disability. I have had occasions where I've had
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to go talk to a pastor after service and be like,
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we need to talk about what you believe about
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me and let's learn some things because I am incredibly
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hurt right now. So it's definitely something
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that is a constant thing on my mind because I
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have had to battle it enough. I don't really
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think there's much. I'm not really, I don't really
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need many accommodations, so I haven't really
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noticed this issue much. I also think that it's
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cool that we're in a church that Pastor Greg
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really has the perspective of having a family
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member where that's something he's really conscious
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of. And when he notices a need or something,
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he'll ask myself or someone else with a disability,
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hey, how does this affect you? So I think it's
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really cool that you've gotten to be in a church
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where that environment or that situation is something
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that was thought of. Yeah, I think, you know,
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there's all kinds of things, right? I mean, like
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every individual is different. Every individual
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has different needs. You know, I mean, for us,
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like coming to church, you know, we can navigate
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space and all of that kind of stuff. But there's
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other needs of like, I mean, bathroom care is
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a big thing. You know, I mean, like it's really
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hard to change a sweetie in a restroom, just
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being honest. She's a big kid. She's not an infant.
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She doesn't fit on infant tables. You know what
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I'm saying? And so those kind of spaces, of course,
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I mean, that's everywhere, though. It's not just
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the church. But I think for me, just growing
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up in a church and spending time in a church,
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there's obviously some truth there because there's
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a lack of representation in the church. And the
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more that I have been involved with other parents
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of children with disabilities and having those
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conversations, like, they don't feel welcome
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in church. It's very hard for them to experience
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church. There is a large population in our community
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of people with disabilities, and very few of
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them are represented in churches all across the
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Quad Cities. And so there's obviously something
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happening there that is not connecting, whether
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that's how we view our children's spaces or even
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our adult spaces or what that looks like. But
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when you can go to an event where people with
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disabilities gather, Like there's a local event
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called Night to Shine that happens once a year
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for people with disabilities. And you can have
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so much registration that you have to fill two
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spaces across two states to make that happen.
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But yet when you walk into churches across the
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Quad Cities, there's no representation of people
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with disabilities, or very few. That should be
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concerning for us as Christians all across, and
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not just in the Quad Cities, but I think across
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the United States and the world, it's probably
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very much true. So I think there's a lot of growth
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in things that can happen and conversations that
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can be had with those type of situations when
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it comes to church and people with disabilities.
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Thank you. And I want to take a moment to acknowledge
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this panel is doing an awesome job. Can we just
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go ahead and thank them right here in the middle?
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They're making asking questions a little tricky
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because they're they're covering them so well
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and doing such a good job that they're they're
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covering a lot of stuff, which I appreciate.
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What does it or would it mean to you for a church
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to be the safest place for you? I'll start with
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that and then Kathy will go to you and then Liam
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and then Dave and sweetie. I think for me. People
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being aware of having things being thought of
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ahead of time. Or, hey, if we have someone with
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a chair, we can let them know. What's the bathroom
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situation? What is the chair situation? Would
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you like help with the drink? Just being aware
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of and thinking of those things for people that
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come in with disabilities. It's always tricky
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because it can be scary to ask someone a question,
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and you might get a response of, I don't need
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help with that. And you can feel behind it, I
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don't like that you asked me that. And sometimes
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I feel that. But at the end of the day, would
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I rather leave somewhere feeling someone wanted
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to help me even though I didn't need it, No one
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was willing to have the courage to ask me if
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I needed help or willing to make a space for
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me. And so I think having the courage to make
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mistakes and understanding that even if you do
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have an awkward moment, that's okay. And it's
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going to take that sometimes for people to feel
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connected and have a space. I think for me, I've
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seen and experienced so much discrimination that
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I am constantly not able to be myself in spaces.
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That is 100 % the thing that makes spaces not
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safe for me is that I can't, I promise I'm not
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crying, the lights are getting me. I can't lean
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into who I am fully and trust that people are
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gonna be okay with that. When people don't know
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things about you, they say things. about you
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that they don't know that they're saying about
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you um and then you learn that you can't trust
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them so you just kind of come to a place where
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you're like this isn't a safe space for me i
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can't be who i am and i'm not great at peopling
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like just plain and simple like people are not
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my gift um so it doesn't make it easy to make
-
those connections and to feel safe with people
-
and so um it would be a huge shift for me to
-
feel like I'm in a space where I could fully
-
be myself and not need to be hiding aspects of
-
myself. Wow, thank you. Do you have anything
-
that you'd like to add to that, Dave? Yeah, I
-
think just overall, you guys have said amazing
-
things. If we take Sweetie into a space... I'm
-
going to make sure that it's safe for her. I
-
think for other people, you know what I mean,
-
like coming into a space to feel safe, it comes
-
to the community mindset, right? Like are we
-
here to care for each other as a community or
-
do we walk in the doors for our own experience?
-
And so if we come into church in our own experience,
-
which is the individual mindset, which a lot
-
of us are stuck in in our culture, and that's
-
just how it is. But if you come in for individual
-
mindset, we're going to come in here, we're going
-
to have our experience and what we thought of
-
the service, what we thought of the music for
-
that day, if we could find parking or not, if
-
we could find a seat or not, and then we're going
-
to walk out the door with our frustrations, our
-
thoughts of what happened in that service. And
-
so as we begin to shift to think about how do
-
we want a community to experience church together,
-
how we want others to come into the space and
-
feel welcome and loved by each other as a body,
-
as a family of Christ, that then begins for us
-
to put ourselves aside and to make space welcome
-
for all people. And that will begin to change
-
as we begin to view things that way, and I think
-
it will begin to change as a community in the
-
church and the body as a church as we begin to
-
think that way. And I think that this is a great
-
space. I see that already happening. The fact
-
that we're having these discussions is the reason
-
that Greg's heart and the church's heart is that
-
we begin to become more of a community -minded
-
space of what we think of others first and not
-
just ourselves when we come to a church, and
-
that's the way it should be. And so yeah I think
-
there's always things right for others to come
-
in and feel space and there's things that we
-
have to think about whether that is facilities
-
or layout or extra volunteers you know because
-
sometimes people disabilities need help and support.
-
And so if we're going to have children coming
-
in with more disabilities it's going to take
-
more volunteers to help out in spaces to help
-
navigate that especially if their children and
-
their parents have you know are able bodied.
-
It allows them to have normal experience too
-
and allows them to have a little bit of peace
-
knowing that their child can be taken care of
-
and they don't have to be the caretaker of their
-
child at church also. And so, you know, there's
-
all kinds of things I think that can be done
-
and being mindful. And I see a beauty in this
-
church already. I mean, I see mothers coming
-
in with infants and I see other people who go
-
over to them and take their infant from them
-
so that they can have a little bit of space,
-
you know, and a little bit of peace and be able
-
to participate and support. I think as those
-
things kind of keep in mind, people feel more
-
welcome involved. as we're thinking of others
-
first instead of ourselves when we come into
-
spaces. Thank you. And sometimes when my wife
-
and I leave on our way home, and some of you
-
may have noticed this as well, that for the size
-
of our congregation, there's a lot of really
-
young infants and young kids, people of different
-
backgrounds represented, and people with disabilities
-
represented. And I think that's really cool,
-
and I think that says a lot about the community
-
that we have and the choices that our leadership
-
has made. And sometimes I could be in a much
-
larger group of people and be the only person
-
represented as a person with a clear physical
-
disability. But that's not the case here, and
-
I love that. I'm going to ask another question.
-
There's definitely some overlap here. So please
-
don't hesitate if you don't have something additional
-
to add. Just so I didn't say that. But the next
-
one I have for you is, what does it mean to you
-
to see people from diverse backgrounds, including
-
those with disabilities, included and given space
-
to be who God made them to be among Christians
-
and Christian community? That one's a little
-
longer, so I'm going to read it again. What does
-
it mean to you? To see people from diverse backgrounds
-
included and given space to be who God made them
-
to be among Christians and Christian community.
-
I'll start. Liam, do you have anything you'd
-
like to add to that one? I don't really have
-
any deep insight, but it does mean a lot to like
-
me as a person. Yeah, that's all. Thank you.
-
So I don't know many of you, but I teach it.
-
So I have a lot of facts in my head right now.
-
And one of them is the fact that like the CDC
-
says 28 % of non institutionalized adults have
-
a disability. Like that's a large number of people.
-
So if congregations are trying to be representative
-
of the communities that they're in, we should
-
expect about a quarter of the people. whether
-
or not you're able to see it so i think that
-
like framing it that way helps us to think a
-
little bit differently about who's in our space
-
right like that's a lot of people i don't have
-
a count for this room but it's a significant
-
number of people right and so if we're thinking
-
about that across multiple demographics like
-
if we want to be the the community, we need to
-
have people represented from those spaces, and
-
then that helps us to feel seen and be present
-
in spaces differently when we know we're not,
-
like, potentially the only one, right? Yeah,
-
I think for me, you know, I've said a lot already,
-
you know, but I think even for me just as a parent
-
with Sweetie, of some of the things that we went
-
through, like, it was easy for me to cross some...
-
boundaries but i had like fear right so like
-
um and this may sound weird to some people but
-
like even like the first time i remember like
-
we we participated in communion with sweetie
-
like walking her forward to give her communion
-
where in some spaces in church culture like that
-
they may not i don't know how people view that
-
you know like i don't understand how people Like,
-
my thought was, like, I don't know if I'm going
-
to get, like, conversations with this ass word.
-
Like, you know, like, saying, hey, well, is she
-
really a Christian? Like, has she said a prayer
-
yet? You know, I've kind of mentioned those things.
-
But I remember that first time of just giving
-
her communion and saying, no, like, I'm all in
-
with her being a part of the body of Christ.
-
You know, baptizing her. We baptized her on Mother's
-
Day two years ago here. You know, I mean, sweetie's
-
probably never given a procession of, like, a
-
personal, you know, profession of faith out loud.
-
But we're walking in that steps of faith of believing
-
that, hey, but God has like God's blessed her
-
and who she is and being OK with that. So for
-
me, like there was some things there where I
-
definitely struggled with feeling comfortable
-
with things in the church. and having to worry
-
about some of those things. But it's also what's
-
pushed me to dive in more to learning and to
-
researching and to, like, you know, reading the
-
Bible and having other discussions with people
-
about faith and what that looks like with people
-
with disabilities, especially where there's nonverbal,
-
you know, involved where they can't kind of vocalize
-
their thoughts. So yeah, and I think a lot of
-
misconceptions come through appearance, but there's
-
also, like you said, so much that's not seen.
-
But I also think with the church, I'll reiterate
-
again, we have to do better because there's a
-
huge community that's not represented and not
-
going to church. And that to me is where we could
-
grow as a church, is how do we reach out more
-
in our outreach to those areas and creating space
-
where people feel welcomed. Thank you. There
-
have been some great answers to this question
-
already, but this is the last question that I'll
-
ask, and you can choose if you have anything
-
you'd like to add. What do you think are practical
-
steps that individuals in our community can take
-
to ensure that disabled persons and their families
-
know they are valued, heard, and embraced? I
-
think for me... uh a little disability thing
-
is being willing to ask people if they need assistance
-
with something if you can see some type of challenge
-
they're having but being willing to accept their
-
answer sometimes if i say that i'm trying to
-
move it if someone sees me trying to move a chair
-
and they say hey can i help you uh the answer
-
might be yes the answer might be i have it And
-
then sometimes it's so hard to watch people struggle
-
to do something, but that doesn't mean that they
-
don't want to do it themselves. If I'm grabbing
-
a cup or something like that, and someone asks
-
if I want help, again, it's so appreciated. But
-
sometimes I might be perfectly fine struggling
-
with something for 30 seconds that might take
-
you two seconds to do. And I even noticed that
-
when Liam dropped his phone, There's an offer
-
to pick it up, but you chose to pick it up yourself.
-
And I've noticed just in observing Liam from
-
a distance, I'm going to go out on a limb and
-
say that you and I have in common that we stubbornly
-
would prefer to do things ourselves than accept
-
help. Is that fair? Yeah. Yeah, I'll step out
-
on a limb and say that. And so that determination
-
is there. Being willing to ask and then being
-
willing to accept the answer that's in response
-
and recognize that even if someone struggles
-
with something They might kind of enjoy the fight
-
a little bit So that would be that would be my
-
my answer Do you have anything you'd like to
-
add Liam? I feel similar. Okay. Thank you Yeah,
-
I mean I guess for me there's two big things
-
one of the biggest struggles for many of us with
-
disabilities in place is people's attitudes because
-
people just don't understand disability well
-
we haven't done a good job about talking about
-
it and so these you know unknown biases against
-
disability sometimes overwhelm people and make
-
it really hard for us and I'll throw research
-
at you again we know that the best way to become
-
comfortable with people who are different from
-
you is to spend time with them I know, revolutionary.
-
But thinking about how am I spending time with
-
people and am I getting to know people who are
-
different than me to help you work through some
-
of those things that you might not know that
-
you don't know. But then the other big thing
-
for me is just inviting. I might tell you no
-
100 times, but if you keep inviting me, that's
-
really meaningful. I have lost friends because
-
I said no too many times. Sometimes I say yes,
-
and then the day comes and I need to change my
-
mind and say no right but that invite and being
-
Intentionally included in things is really really
-
important especially I think for people with
-
disabilities because you might have Every intention
-
of going and then your body or your mind might
-
be like not today So having somebody who's still
-
willing to invite you even if you don't show
-
up regularly is really really meaningful Yeah,
-
I think, you know, the same thing, too, is just,
-
like, and I understand, like, I've had to learn
-
how to change my thoughts and processes and my
-
interaction when it comes to, especially people
-
with disabilities. So it's a learning curve,
-
but it's also the first step of just, like, reaching
-
out. You know, I mean, like, I know a lot of
-
people will approach her and may not know how
-
to even interact with her because they don't
-
know her disabilities just even by looking at
-
her. And you can come up and be like, hey, sweetie.
-
And she's just going to give you that look of
-
like, na, na, na, na. And she's going to reach
-
her slobber finger out towards you. And that's
-
what she's going to do because that's how she
-
shows she loves you. Because you can tell by
-
looking at me and wherever we go, we have wet
-
spots. I mean, so that's just life. But as you
-
hang out and spend time with her, you realize
-
the first thing is that she appreciates every
-
single interaction. Like, she soaks it in like
-
a sponge. And so I think for us, like, just going
-
out of our comfort zones and interacting and
-
talking and treating people like people, right?
-
I mean, that's just the overall rule that we
-
can always do better at no matter where we're
-
coming from or who the person is. But, you know...
-
It's just one of those funny things, like even
-
with Cameron, I blew Cameron's mind this morning
-
because he was like, well, why doesn't Sweetie
-
come to Treehouse? And I'm like, because she's
-
18. She's an adult. But you wouldn't know that
-
maybe by first looking at her. And so there's
-
a lot of things like that where it's just understanding
-
as people that we have to treat people as people
-
no matter what we want to label them or put them
-
in categories. You know, and that's just loving
-
them as they are, giving them the respect they
-
deserve, talking to them, interacting with them,
-
giving them the time of day because we all deserve
-
that, you know, and just being aware of that.
-
And it may be hard and difficult, but I think
-
it's just taking the first steps just to break
-
through those barriers yourself, not expect them
-
to come to you and be like, hey, this is what
-
you need to do. Like, break through the barriers.
-
Like, be the person that takes the first step.
-
Find spaces where it needs to happen, where you
-
can. And that goes with all things. Man, put
-
yourself in spaces other than what you live in.
-
Get outside of your circles. That's really how
-
change happens. That's really how we learn, right?
-
Like if you never went to school, you'd be like,
-
you probably know a lot less than what you know.
-
Because you had to get up every morning and you
-
had to go somewhere to learn well That's still
-
the model we live in every single day like you
-
we have to go out of our comfort zone And we
-
have to go to spaces we have to be around people
-
we have to interact and the more we interact
-
We realize how human we all are and then we can
-
begin to change and grow from those perspectives
-
Thank you, you can each take a deep breath unless
-
you have something you'd like to add we're Just
-
a kiss from sweetie. Thank you, sweetie. You
-
guys okay if that's our stopping point? Okay.
-
A couple quick comments. Thank you all so much.
-
Your answers have really resonated with me emotionally,
-
and I know I feel listening to you heard and
-
seen in really special ways. And so thank you
-
for that. I'd also like to do something. I'd
-
like to have Pastor Jen and Pastor Greg come
-
up, and I'm going to say a prayer for them. And
-
as they come up, I want us to think about the
-
work that they do to, if you'll come up on this
-
side of me, to have our community be the special
-
place it is. And when I think of these panels,
-
I know they're different from what we're used
-
to. But they're also discipleship. Isn't following
-
Jesus learning more about how to be like Jesus
-
and what he thinks and feels? And aren't we better
-
able to be Christ followers as we hear and see
-
these things? I think so. So I'd like to pray
-
for Pastor Jan and Pastor Greg. I want to thank
-
God. For the insight that he's given them and
-
the heart that he's given them. And also that
-
you would continue to lead them as they make
-
these efforts to make our church a more welcome
-
place. So I'm going to go ahead and pray for
-
that right now. Father, I thank you so much for
-
Pastor Jen and for Pastor Greg. And I thank you
-
for the heart that you've given them to love
-
people in unique and creative ways. and to go
-
beyond the all are welcome that we see on so
-
many church signs and that so many people think
-
that they mean, but don't understand what that
-
entails. Thank you for towards people of all
-
the things we're talking about on these panels,
-
especially today with disability, the heart that
-
you've given them to ask questions and to read
-
deeper into your scriptures. And I pray that
-
you'd continue to guide them as they go on that
-
journey to have increased insight and wisdom.
-
And we ask this in Jesus name. Amen. Amen. Can
-
we thank everybody up here one more time? All
-
right, panelists, you're dismissed.