Sermon

Imago Dei - Panel on Disability

The House - a Local Church

Open publisher episode ↗

Publisher transcript

Transcript

View source ↗
  1. As they're getting comfortable, I'll read through

  2. an intro that we're going to have for each one

  3. of our panels. So I'll read that and then we'll

  4. get started. Like I said, good morning. My name

  5. is Scott. We're in the third week of our Imago

  6. Dei series. As our panelists come up and get

  7. settled in, we have a primer we want to read.

  8. at the top of each of our panel discussions is

  9. a way of setting the stage. The scriptures tell

  10. us that from the beginning, we were created in

  11. the image of God, and so we bear the likeness

  12. of our creator, every single one of us. This

  13. is why for many years now, our church website

  14. has said, we welcome all persons and have no

  15. leadership limits based on race, gender, identity,

  16. sexual orientation, or physical ability. for

  17. those who confess Jesus Christ as Lord. The central

  18. standard is Jesus. But because of how the Bible

  19. has been interpreted over the centuries, the

  20. church has often implicitly and explicitly communicated

  21. that we do not all bear the image of God or belong

  22. equally. Women have been left out or excluded

  23. from leadership in the church historic. Gay,

  24. lesbian, trans, and queer folk have been promised

  25. they can belong so long as they fit in. People

  26. with differently abled bodies have often been

  27. excluded or treated less than because of their

  28. physical bodies. And non -white cultures and

  29. ethnic groups have often been treated like they're

  30. only here to help the quote -unquote real image

  31. bearers. It sounds ugly because it is. It doesn't

  32. sound like Jesus because it isn't. And so our

  33. panel discussions during the Imago Dei series

  34. are meant to be a kind of promise, not to perfection

  35. or utopia. And we aren't expecting full agreement

  36. for everyone in the room about everything. But

  37. these conversations are a kind of promise that

  38. we are working and learning to be a community

  39. that is safe. for people pushed to the margins,

  40. people of color, women, the disabled, and the

  41. LGBTQ plus person, because we are all created

  42. in the image of God, and no one should be left

  43. out. As we all discuss what it means for us to

  44. bear the image of God in the church and in the

  45. world, and for the church to be a safe place

  46. for us to grow in the likeness of Jesus, and

  47. the fullness of what God has created us to be,

  48. will you please welcome our panel for today?

  49. I'm going to start all the way down to the end

  50. with you, Dave, and then Kathy and Liam will

  51. go to you. If each of you would introduce yourselves

  52. and your friends and why you're participating

  53. in this panel, that would be great. So this is

  54. Sweetie Paw, when you guys recognize and know

  55. her. And my name's Dave Hodge. I'm here kind

  56. of just as her dad and to talk about it from

  57. a parent's perspective. And Sweetie will interject

  58. with laughs and probably chomps throughout the

  59. whole entire thing. So do you want to say anything?

  60. I'm Kathy Webb. I am here because I have several

  61. different invisible or non -apparent disabilities.

  62. I'm William. You all probably know me as Liam.

  63. And what did I need to say? I've got some physical

  64. disabilities in my arm. And then like my back

  65. too. So yeah. All right. Thank you. And again,

  66. my name is Scott. I had a spinal cord injury

  67. about 10 years ago. So this year is my anniversary

  68. 10 year of being in a chair. And then I also

  69. am the parent of a child with a disability. Our

  70. daughter that we were able to adopt in November,

  71. but have been caring for since birth and will

  72. be three this month has Rett syndrome. which

  73. affects her speech and her physical abilities

  74. as well. How did you initially get connected

  75. to God and church? And this time, Liam, if I

  76. can start with you, you can share, and then we'll

  77. go down and through. I mean, my dad is Pastor

  78. Greg, so I... Yeah, I grew up here pretty much.

  79. I've always known, like God and stuff. So yeah,

  80. that's all. Yeah, so my parents come from two

  81. very different Christian faith traditions. So

  82. they got married and didn't know what to do or

  83. where to go. So they didn't go anywhere. And

  84. then I was invited to a vacation Bible school

  85. when I was six. And we started attending that

  86. church afterwards. Yeah, and I was raised by

  87. both my parents from a very young age going to

  88. church. They always taught our kids clubs and

  89. Sunday school class and was a part of a program

  90. that did verse memorization as a kid, like an

  91. Awanas program. And I remember being seven years

  92. old and just asking my mom what a verse meant

  93. and how to explain it to me and accept your Christ

  94. at that point. And then it has always been a

  95. place of safety in my life and community the

  96. church has just kind of. Moving around a lot

  97. and getting involved in ministry. Also went on

  98. to college and got a degree in ministry. Have

  99. been a part of a lot of nonprofits and stuff.

  100. And then Sweetie came into our care and has been

  101. with us for going on six years almost now. So

  102. yeah, so she's just kind of been a part of our

  103. lives since then. Awesome. And for me, similar

  104. to Liam, I'm a pastor's kid. So I was at church

  105. every Sunday for as long as I can remember. whether

  106. I wanted to be there or not, and it stuck. I

  107. like being there, so I'm still there and still

  108. a part. I'll start with you again, Liam. Have

  109. you found it difficult or natural to accept how

  110. you were made or your current physicality? I

  111. feel like since... I mean, like, yeah, I guess

  112. I've been this way for the majority of my life.

  113. So if it is natural, it's just because it's,

  114. like, most of what I've known, I guess. So, yeah,

  115. I guess I would say, like, I've come natural

  116. to it. So you've gotten comfortable with, you

  117. know, the body that you have. Yeah, I make do

  118. with it. Both. There are some parts of me that

  119. are easier than others. So I think, like, I have

  120. a chronic pain disability, amongst some other

  121. things, and that one tends to be weirdly easier

  122. to deal with with other people, but not as easy

  123. with myself. So it just depends on the circumstances

  124. and with whom I'm speaking as to whether or not

  125. certain parts of me are easier or more difficult.

  126. Yeah, and so for Sweetie, she's nonverbal. has

  127. some developmental delay, has white matter changes.

  128. And so, you know, asking her questions, sweetie,

  129. do you love being sweetie? She's very happy all

  130. the time. This is her demeanor, who she is. From

  131. our parents' perspective, I mean, we have been

  132. all in with her from the very beginning in life.

  133. We've learned a lot and grown a lot, especially

  134. around the ideas of faith. Just processing her

  135. and who she is through faith. And so I think

  136. we're at a very accepting place in our lives

  137. with her and who she is. And we're always learning.

  138. I mean, she's new every day. Yeah, thank you.

  139. For me, it really depends on the day and situation.

  140. There's days that I wake up and think, you know,

  141. hey, this is the situation I'm in. It's okay.

  142. I'm so grateful for the things I'm able to do

  143. and the supports that I have. And then there's

  144. mornings I wake up and feel like this is just

  145. too much work. This is too frustrating and feel

  146. very frustrated. So it can go back and forth

  147. for me, definitely. What do you think God feels

  148. about you? And has that changed over time? I

  149. felt some acceptance. from the beginning of my

  150. disability because it happened very suddenly

  151. and it just became you know at the time I was

  152. 28 so I had some maturity and age and so it just

  153. happened and you know I just came to the conclusion

  154. pretty quickly of I had a relationship with God

  155. this has happened I'll continue to have relationship

  156. with God and so accepting that He understood

  157. and accepted me, came pretty naturally. And I'll

  158. remind our panelists, and just so you know, that

  159. all of them know that if there's a question that

  160. they don't really have anything to say about

  161. or don't want to speak to, then they're welcome

  162. to just go ahead and say that. So not everybody

  163. will have something to add to every question.

  164. Liam, do you have anything you'd like to share

  165. on this one? I just think he cares about me just

  166. as much as everybody else. So yeah, that's all.

  167. Ditto. Well, I'll talk a little bit about this.

  168. Is that okay? I'm sorry. So yeah, so with Sweetie,

  169. this has been a huge change for me personally

  170. and my thoughts of understanding religion and

  171. Christianity and faith and all those type of

  172. things. With her being nonverbal, I think a lot

  173. of people... First of all, I'll say this. I think

  174. a lot of people... I mean, Sweden's very complex.

  175. And from the first view of her, I think the judgments

  176. of, well, you know, even her schools would say

  177. that when she was first tested that she ranks

  178. around three or four years old. But she also

  179. speaks another language. She came here speaking

  180. another language. English was not her first language.

  181. So the fact that she has... and understands English,

  182. and as we talk to her and can communicate in

  183. some phrases and respond to those things with

  184. her feelings and match up those feelings with

  185. her words when she does talk, simply saying I

  186. love you or I eat or whatever she says, shows

  187. to me that she has far more capabilities of understanding

  188. than what she is given. And so when it comes

  189. to faith and understanding, though, she also

  190. is not able to respond. in the typical ways that

  191. we have laid out through evangelical Christianity,

  192. of that we expect a person to respond, to accept

  193. Jesus as their personal Savior, and say the prayer,

  194. and spend their life with devotion and prayer,

  195. and reading the Bible and Scripture, and all

  196. those type of things. And so that has to then

  197. begin to shape, for me, differently. Like, how

  198. does God view her? Perfectly. And so for me,

  199. that is the beginning point for me of understanding

  200. faith and understanding when it comes to her

  201. that God looks at her perfectly. God's not expecting

  202. anything from her more. He just gets to enjoy

  203. her every single day. And I believe that deeply,

  204. just as much as we get to live and enjoy her

  205. every single day. And I have no expectations

  206. for her as a parent, as a father. I think it

  207. shaped a lot for me. It's changed a lot for me.

  208. It's continuing to change a lot for me and how

  209. I understand how God sees her and then how I'm

  210. able to relate that even to myself and to others

  211. about how really truly God sees us and understands

  212. us. And what are those steps that we have to

  213. take? And what does that look like? And I am

  214. still learning. I'm still growing. I don't sit

  215. here to say I'm an expert in this field. But

  216. I will say the experience of having Sweden in

  217. my life. has definitely began to shift in my

  218. mind and my heart and my understanding of how

  219. I see scripture and how I read scripture when

  220. it pertains to God's love for us, God's grace

  221. for us, what Jesus has done on the cross for

  222. us. Because if we truly believe it does not come

  223. from us earning those things or whatever that

  224. may look like. then I have to believe that for

  225. God and Jesus for her also. And so I believe

  226. Jesus deeply loves her, cares with her, interacts

  227. with her on a daily basis, lives with her, walks

  228. with her, laughs with her, speaks to her, shows

  229. up to her in dreams and ways that I don't understand

  230. because she is constantly filled with joy and

  231. laughter. And I wish, you know, more of my life

  232. reflected that of what Sweetie lives out every

  233. day. And with that, our next question is, is

  234. there a certain place you go in the scriptures

  235. that reminds you of that or causes you to think

  236. of that? Yeah, so like for me, like the beginning

  237. of the Sermon on the Mount, right, is like Jesus's

  238. first ministry. Understanding the idea that when

  239. Jesus goes, begins to speak, he has a plethora

  240. of crowds, like thousands of people are following

  241. him. before he ever opens his mouth. And those

  242. are people who are demon -possessed, who are

  243. sick, who have infirmities, who are coming to

  244. Jesus to be healed. And so they're all coming

  245. to Jesus, so Jesus heals them, and Jesus heals

  246. them, casts out demons, and does all of this,

  247. and then he sits down, and he begins to speak

  248. to his disciples and the crowd, and the first

  249. words that come out of his mouth is what we call

  250. the Beatitudes. which can be looked at a thousand

  251. different ways, but if you realize the first

  252. words out of his mouth is blessed. Blessed are

  253. those who are poor. Blessed are those who are

  254. persecuted. Blessed are those who are sick. Because,

  255. then he goes on to say, because they would see

  256. the kingdom of God, they would do all these things.

  257. Understanding that passage for me, knowing that

  258. the concept of that all these people who are

  259. coming to Jesus to be healed are people who have

  260. been told their whole entire lives and in that

  261. culture that they are cursed by God. In the biblical

  262. times, if you had any type of ailment, sickness,

  263. disability, injury, it's because you ticked off

  264. God, and God was punishing you, and then you

  265. were removed from your home. So you had to live

  266. outside of the city walls. You were cast out.

  267. You were seen as less. You were seen as unclean.

  268. So to have all these people who believe because

  269. of their infirmities, because of their disability,

  270. or whatever they had going on, by culture, by

  271. religion, that they were cursed, they come to

  272. Jesus and they get the complete opposite. A,

  273. they are freed of it. And then B, they're told

  274. they are blessed. That you were never cursed.

  275. That you have always been loved. That in God's

  276. eyes, you have always mattered. You have always

  277. been seen. So that for me is huge understanding

  278. to begin this journey of looking at. you know,

  279. and understanding sweetie through a life and

  280. eyes of her disabilities and needs. And then

  281. there's all kinds of stuff, right? Christ came

  282. to die on the cross, and he says, I came to give

  283. you life and life to the full. It's not an afterlife

  284. to the full. It's a life currently to the full.

  285. And so I believe that Christ died for my life

  286. to be full. I believe that sweetie also gets

  287. to have a full life because of that. Numerous

  288. passages. I mean, I could go on all day. with

  289. this, and I'll stop and pass it on. But I think

  290. our ideas of heaven, of getting to heaven, and

  291. we think the beauty that is heaven is there,

  292. and we want to get there, but that becomes like

  293. that escapism of, well, life is hard here, and

  294. so there it's going to be perfect. But then Jesus,

  295. again, like in his prayer, says, right, that

  296. we pray that his kingdom come, his will be done

  297. on earth, now, presently, just as it is in heaven.

  298. And so that we get to live in God's presence

  299. fully now on earth, just as we will one day in

  300. heaven. Like that again, to me, plays into the

  301. role of Sweetie's life, that she's living the

  302. fullness of Christ now in her earthly body as

  303. she will one day in heaven. So, so many things,

  304. I think, for me fall into that. Yeah, thank you.

  305. And to answer that question for myself and also

  306. connect with a couple of the things you said.

  307. My daughter is also nonverbal and has the most

  308. beautiful smile and the most beautiful laugh.

  309. And as I've met Sweetie and others, I have never

  310. doubted for a second whether Sweetie was loved

  311. by God fully. It is just so clear. But we often

  312. struggle with that for ourselves and others.

  313. Yeah. It can be a challenge for some of us that

  314. are, it's always tough to find words, but able

  315. -bodied or of normal mind. We can question decisions,

  316. different things. But we never question that

  317. for some of the more profoundly disabled. And

  318. I think one of the reasons that's significant

  319. is that doesn't come naturally. Throughout history,

  320. that hasn't been the case, that we look at people

  321. with more profound disabilities and say, wow,

  322. that person is really a sign of God's love and

  323. God's grace. And even those who don't recognize

  324. Jesus as God's son or scripture are still influenced

  325. in our culture by that belief. And everywhere

  326. I would go in the world, people wouldn't necessarily

  327. jump up and open a door for me or ask me if I

  328. needed help. There are lots of places that that

  329. might not be normal. For us, in our culture,

  330. it's pretty normal. But I very strongly believe

  331. that's because of the influence of, even when

  332. we don't realize it, of Christianity, meaning

  333. Jesus, and those teachings that you mentioned.

  334. And I'll pause there. That's a tough one to pause

  335. on. Liam, do you have anything to add about a

  336. certain place that you see in scriptures? I was

  337. thinking about it last night. And I went, I think

  338. it was Romans 8. And Paul was writing about,

  339. like, that we aren't from, like, this realm.

  340. It's our, like, spirits that matter. And he was

  341. just saying that, like, it doesn't matter, like,

  342. what you're capable of doing with your body.

  343. And it's like you need to just lead with your

  344. spirit. Awesome. Thank you. I'm going to take

  345. us to the Old Testament. So I love Ecclesiastes.

  346. I'm one of those weirdos. And Ecclesiastes 7

  347. .13 says, who can make straight what God has

  348. made crooked? And I just love that verse for

  349. several reasons. But, you know, God explicitly

  350. says that he is the one who creates disability.

  351. He told Moses this. He said, who makes man deaf?

  352. Who makes man blind? Moses was complaining because

  353. he didn't want to do what God told him to because

  354. he had a communication disability and he didn't

  355. know how he would go about doing that. And so

  356. God is like, I made you this way. But because

  357. you're uncomfortable with this, I will send your

  358. brother Aaron as an accommodation for you. Right.

  359. And so like there's this beautiful history throughout

  360. the Old Testament where God is like, I did this.

  361. And people are like, well, OK, then I guess I

  362. have to deal with it. And I think for me, like

  363. just recognizing the fact that like I'm not a

  364. mistake, like God didn't have an error in the

  365. pattern that he was using when he made people

  366. like that's just so powerful to me to think like.

  367. God did this for a reason, and I am this way

  368. for a reason, and I live my life different than

  369. a lot of other people, but that's by design.

  370. That does different things. It teaches different

  371. things. It allows me to learn different things

  372. than it would if I just, like, you know, fit

  373. them old people. Thank you. I'm going to move

  374. on to, have you ever felt othered by Christianity

  375. or the church? Because of your body and abilities.

  376. And I would just start with the really simple

  377. one of seating. I've been in churches where there

  378. wasn't anything available for persons that use

  379. a chair. And that can be tricky because it's

  380. like, wow, nobody thought of this. You know,

  381. nobody thought of the possibility of someone

  382. in a chair coming in. This is where sometimes

  383. people overcompensate. So they start removing

  384. a whole row of chairs. And I'm like, I just need

  385. a spot. I don't need you to rearrange the sanctuary.

  386. So that's just a little example of sometimes

  387. in church, and not just in church, but included

  388. in there where people might wrestle or church

  389. structures might wrestle to how to figure out

  390. how to handle disability. Kathy, do you have

  391. anything to mention that? And then I'll go Liam

  392. and then Dave and Sweetie. Sure. So constantly,

  393. not as much in some spaces as in others, but

  394. it's little things, right? Like, so sometimes

  395. my pain doesn't want me to stand up, but I am

  396. young. And so people are like, why aren't you

  397. standing up? Right. And then also sometimes when

  398. you sit and you can't see the screen, so you

  399. can't sing along. You literally can't see through

  400. the tall people standing in front of you. But

  401. also just little things like sometimes the songs

  402. that are chosen have lyrics in them that are

  403. just really hurtful. And there's just so many

  404. places where there could be more thought put

  405. into how we're thinking about and talking about

  406. disability. I have had occasions where I've had

  407. to go talk to a pastor after service and be like,

  408. we need to talk about what you believe about

  409. me and let's learn some things because I am incredibly

  410. hurt right now. So it's definitely something

  411. that is a constant thing on my mind because I

  412. have had to battle it enough. I don't really

  413. think there's much. I'm not really, I don't really

  414. need many accommodations, so I haven't really

  415. noticed this issue much. I also think that it's

  416. cool that we're in a church that Pastor Greg

  417. really has the perspective of having a family

  418. member where that's something he's really conscious

  419. of. And when he notices a need or something,

  420. he'll ask myself or someone else with a disability,

  421. hey, how does this affect you? So I think it's

  422. really cool that you've gotten to be in a church

  423. where that environment or that situation is something

  424. that was thought of. Yeah, I think, you know,

  425. there's all kinds of things, right? I mean, like

  426. every individual is different. Every individual

  427. has different needs. You know, I mean, for us,

  428. like coming to church, you know, we can navigate

  429. space and all of that kind of stuff. But there's

  430. other needs of like, I mean, bathroom care is

  431. a big thing. You know, I mean, like it's really

  432. hard to change a sweetie in a restroom, just

  433. being honest. She's a big kid. She's not an infant.

  434. She doesn't fit on infant tables. You know what

  435. I'm saying? And so those kind of spaces, of course,

  436. I mean, that's everywhere, though. It's not just

  437. the church. But I think for me, just growing

  438. up in a church and spending time in a church,

  439. there's obviously some truth there because there's

  440. a lack of representation in the church. And the

  441. more that I have been involved with other parents

  442. of children with disabilities and having those

  443. conversations, like, they don't feel welcome

  444. in church. It's very hard for them to experience

  445. church. There is a large population in our community

  446. of people with disabilities, and very few of

  447. them are represented in churches all across the

  448. Quad Cities. And so there's obviously something

  449. happening there that is not connecting, whether

  450. that's how we view our children's spaces or even

  451. our adult spaces or what that looks like. But

  452. when you can go to an event where people with

  453. disabilities gather, Like there's a local event

  454. called Night to Shine that happens once a year

  455. for people with disabilities. And you can have

  456. so much registration that you have to fill two

  457. spaces across two states to make that happen.

  458. But yet when you walk into churches across the

  459. Quad Cities, there's no representation of people

  460. with disabilities, or very few. That should be

  461. concerning for us as Christians all across, and

  462. not just in the Quad Cities, but I think across

  463. the United States and the world, it's probably

  464. very much true. So I think there's a lot of growth

  465. in things that can happen and conversations that

  466. can be had with those type of situations when

  467. it comes to church and people with disabilities.

  468. Thank you. And I want to take a moment to acknowledge

  469. this panel is doing an awesome job. Can we just

  470. go ahead and thank them right here in the middle?

  471. They're making asking questions a little tricky

  472. because they're they're covering them so well

  473. and doing such a good job that they're they're

  474. covering a lot of stuff, which I appreciate.

  475. What does it or would it mean to you for a church

  476. to be the safest place for you? I'll start with

  477. that and then Kathy will go to you and then Liam

  478. and then Dave and sweetie. I think for me. People

  479. being aware of having things being thought of

  480. ahead of time. Or, hey, if we have someone with

  481. a chair, we can let them know. What's the bathroom

  482. situation? What is the chair situation? Would

  483. you like help with the drink? Just being aware

  484. of and thinking of those things for people that

  485. come in with disabilities. It's always tricky

  486. because it can be scary to ask someone a question,

  487. and you might get a response of, I don't need

  488. help with that. And you can feel behind it, I

  489. don't like that you asked me that. And sometimes

  490. I feel that. But at the end of the day, would

  491. I rather leave somewhere feeling someone wanted

  492. to help me even though I didn't need it, No one

  493. was willing to have the courage to ask me if

  494. I needed help or willing to make a space for

  495. me. And so I think having the courage to make

  496. mistakes and understanding that even if you do

  497. have an awkward moment, that's okay. And it's

  498. going to take that sometimes for people to feel

  499. connected and have a space. I think for me, I've

  500. seen and experienced so much discrimination that

  501. I am constantly not able to be myself in spaces.

  502. That is 100 % the thing that makes spaces not

  503. safe for me is that I can't, I promise I'm not

  504. crying, the lights are getting me. I can't lean

  505. into who I am fully and trust that people are

  506. gonna be okay with that. When people don't know

  507. things about you, they say things. about you

  508. that they don't know that they're saying about

  509. you um and then you learn that you can't trust

  510. them so you just kind of come to a place where

  511. you're like this isn't a safe space for me i

  512. can't be who i am and i'm not great at peopling

  513. like just plain and simple like people are not

  514. my gift um so it doesn't make it easy to make

  515. those connections and to feel safe with people

  516. and so um it would be a huge shift for me to

  517. feel like I'm in a space where I could fully

  518. be myself and not need to be hiding aspects of

  519. myself. Wow, thank you. Do you have anything

  520. that you'd like to add to that, Dave? Yeah, I

  521. think just overall, you guys have said amazing

  522. things. If we take Sweetie into a space... I'm

  523. going to make sure that it's safe for her. I

  524. think for other people, you know what I mean,

  525. like coming into a space to feel safe, it comes

  526. to the community mindset, right? Like are we

  527. here to care for each other as a community or

  528. do we walk in the doors for our own experience?

  529. And so if we come into church in our own experience,

  530. which is the individual mindset, which a lot

  531. of us are stuck in in our culture, and that's

  532. just how it is. But if you come in for individual

  533. mindset, we're going to come in here, we're going

  534. to have our experience and what we thought of

  535. the service, what we thought of the music for

  536. that day, if we could find parking or not, if

  537. we could find a seat or not, and then we're going

  538. to walk out the door with our frustrations, our

  539. thoughts of what happened in that service. And

  540. so as we begin to shift to think about how do

  541. we want a community to experience church together,

  542. how we want others to come into the space and

  543. feel welcome and loved by each other as a body,

  544. as a family of Christ, that then begins for us

  545. to put ourselves aside and to make space welcome

  546. for all people. And that will begin to change

  547. as we begin to view things that way, and I think

  548. it will begin to change as a community in the

  549. church and the body as a church as we begin to

  550. think that way. And I think that this is a great

  551. space. I see that already happening. The fact

  552. that we're having these discussions is the reason

  553. that Greg's heart and the church's heart is that

  554. we begin to become more of a community -minded

  555. space of what we think of others first and not

  556. just ourselves when we come to a church, and

  557. that's the way it should be. And so yeah I think

  558. there's always things right for others to come

  559. in and feel space and there's things that we

  560. have to think about whether that is facilities

  561. or layout or extra volunteers you know because

  562. sometimes people disabilities need help and support.

  563. And so if we're going to have children coming

  564. in with more disabilities it's going to take

  565. more volunteers to help out in spaces to help

  566. navigate that especially if their children and

  567. their parents have you know are able bodied.

  568. It allows them to have normal experience too

  569. and allows them to have a little bit of peace

  570. knowing that their child can be taken care of

  571. and they don't have to be the caretaker of their

  572. child at church also. And so, you know, there's

  573. all kinds of things I think that can be done

  574. and being mindful. And I see a beauty in this

  575. church already. I mean, I see mothers coming

  576. in with infants and I see other people who go

  577. over to them and take their infant from them

  578. so that they can have a little bit of space,

  579. you know, and a little bit of peace and be able

  580. to participate and support. I think as those

  581. things kind of keep in mind, people feel more

  582. welcome involved. as we're thinking of others

  583. first instead of ourselves when we come into

  584. spaces. Thank you. And sometimes when my wife

  585. and I leave on our way home, and some of you

  586. may have noticed this as well, that for the size

  587. of our congregation, there's a lot of really

  588. young infants and young kids, people of different

  589. backgrounds represented, and people with disabilities

  590. represented. And I think that's really cool,

  591. and I think that says a lot about the community

  592. that we have and the choices that our leadership

  593. has made. And sometimes I could be in a much

  594. larger group of people and be the only person

  595. represented as a person with a clear physical

  596. disability. But that's not the case here, and

  597. I love that. I'm going to ask another question.

  598. There's definitely some overlap here. So please

  599. don't hesitate if you don't have something additional

  600. to add. Just so I didn't say that. But the next

  601. one I have for you is, what does it mean to you

  602. to see people from diverse backgrounds, including

  603. those with disabilities, included and given space

  604. to be who God made them to be among Christians

  605. and Christian community? That one's a little

  606. longer, so I'm going to read it again. What does

  607. it mean to you? To see people from diverse backgrounds

  608. included and given space to be who God made them

  609. to be among Christians and Christian community.

  610. I'll start. Liam, do you have anything you'd

  611. like to add to that one? I don't really have

  612. any deep insight, but it does mean a lot to like

  613. me as a person. Yeah, that's all. Thank you.

  614. So I don't know many of you, but I teach it.

  615. So I have a lot of facts in my head right now.

  616. And one of them is the fact that like the CDC

  617. says 28 % of non institutionalized adults have

  618. a disability. Like that's a large number of people.

  619. So if congregations are trying to be representative

  620. of the communities that they're in, we should

  621. expect about a quarter of the people. whether

  622. or not you're able to see it so i think that

  623. like framing it that way helps us to think a

  624. little bit differently about who's in our space

  625. right like that's a lot of people i don't have

  626. a count for this room but it's a significant

  627. number of people right and so if we're thinking

  628. about that across multiple demographics like

  629. if we want to be the the community, we need to

  630. have people represented from those spaces, and

  631. then that helps us to feel seen and be present

  632. in spaces differently when we know we're not,

  633. like, potentially the only one, right? Yeah,

  634. I think for me, you know, I've said a lot already,

  635. you know, but I think even for me just as a parent

  636. with Sweetie, of some of the things that we went

  637. through, like, it was easy for me to cross some...

  638. boundaries but i had like fear right so like

  639. um and this may sound weird to some people but

  640. like even like the first time i remember like

  641. we we participated in communion with sweetie

  642. like walking her forward to give her communion

  643. where in some spaces in church culture like that

  644. they may not i don't know how people view that

  645. you know like i don't understand how people Like,

  646. my thought was, like, I don't know if I'm going

  647. to get, like, conversations with this ass word.

  648. Like, you know, like, saying, hey, well, is she

  649. really a Christian? Like, has she said a prayer

  650. yet? You know, I've kind of mentioned those things.

  651. But I remember that first time of just giving

  652. her communion and saying, no, like, I'm all in

  653. with her being a part of the body of Christ.

  654. You know, baptizing her. We baptized her on Mother's

  655. Day two years ago here. You know, I mean, sweetie's

  656. probably never given a procession of, like, a

  657. personal, you know, profession of faith out loud.

  658. But we're walking in that steps of faith of believing

  659. that, hey, but God has like God's blessed her

  660. and who she is and being OK with that. So for

  661. me, like there was some things there where I

  662. definitely struggled with feeling comfortable

  663. with things in the church. and having to worry

  664. about some of those things. But it's also what's

  665. pushed me to dive in more to learning and to

  666. researching and to, like, you know, reading the

  667. Bible and having other discussions with people

  668. about faith and what that looks like with people

  669. with disabilities, especially where there's nonverbal,

  670. you know, involved where they can't kind of vocalize

  671. their thoughts. So yeah, and I think a lot of

  672. misconceptions come through appearance, but there's

  673. also, like you said, so much that's not seen.

  674. But I also think with the church, I'll reiterate

  675. again, we have to do better because there's a

  676. huge community that's not represented and not

  677. going to church. And that to me is where we could

  678. grow as a church, is how do we reach out more

  679. in our outreach to those areas and creating space

  680. where people feel welcomed. Thank you. There

  681. have been some great answers to this question

  682. already, but this is the last question that I'll

  683. ask, and you can choose if you have anything

  684. you'd like to add. What do you think are practical

  685. steps that individuals in our community can take

  686. to ensure that disabled persons and their families

  687. know they are valued, heard, and embraced? I

  688. think for me... uh a little disability thing

  689. is being willing to ask people if they need assistance

  690. with something if you can see some type of challenge

  691. they're having but being willing to accept their

  692. answer sometimes if i say that i'm trying to

  693. move it if someone sees me trying to move a chair

  694. and they say hey can i help you uh the answer

  695. might be yes the answer might be i have it And

  696. then sometimes it's so hard to watch people struggle

  697. to do something, but that doesn't mean that they

  698. don't want to do it themselves. If I'm grabbing

  699. a cup or something like that, and someone asks

  700. if I want help, again, it's so appreciated. But

  701. sometimes I might be perfectly fine struggling

  702. with something for 30 seconds that might take

  703. you two seconds to do. And I even noticed that

  704. when Liam dropped his phone, There's an offer

  705. to pick it up, but you chose to pick it up yourself.

  706. And I've noticed just in observing Liam from

  707. a distance, I'm going to go out on a limb and

  708. say that you and I have in common that we stubbornly

  709. would prefer to do things ourselves than accept

  710. help. Is that fair? Yeah. Yeah, I'll step out

  711. on a limb and say that. And so that determination

  712. is there. Being willing to ask and then being

  713. willing to accept the answer that's in response

  714. and recognize that even if someone struggles

  715. with something They might kind of enjoy the fight

  716. a little bit So that would be that would be my

  717. my answer Do you have anything you'd like to

  718. add Liam? I feel similar. Okay. Thank you Yeah,

  719. I mean I guess for me there's two big things

  720. one of the biggest struggles for many of us with

  721. disabilities in place is people's attitudes because

  722. people just don't understand disability well

  723. we haven't done a good job about talking about

  724. it and so these you know unknown biases against

  725. disability sometimes overwhelm people and make

  726. it really hard for us and I'll throw research

  727. at you again we know that the best way to become

  728. comfortable with people who are different from

  729. you is to spend time with them I know, revolutionary.

  730. But thinking about how am I spending time with

  731. people and am I getting to know people who are

  732. different than me to help you work through some

  733. of those things that you might not know that

  734. you don't know. But then the other big thing

  735. for me is just inviting. I might tell you no

  736. 100 times, but if you keep inviting me, that's

  737. really meaningful. I have lost friends because

  738. I said no too many times. Sometimes I say yes,

  739. and then the day comes and I need to change my

  740. mind and say no right but that invite and being

  741. Intentionally included in things is really really

  742. important especially I think for people with

  743. disabilities because you might have Every intention

  744. of going and then your body or your mind might

  745. be like not today So having somebody who's still

  746. willing to invite you even if you don't show

  747. up regularly is really really meaningful Yeah,

  748. I think, you know, the same thing, too, is just,

  749. like, and I understand, like, I've had to learn

  750. how to change my thoughts and processes and my

  751. interaction when it comes to, especially people

  752. with disabilities. So it's a learning curve,

  753. but it's also the first step of just, like, reaching

  754. out. You know, I mean, like, I know a lot of

  755. people will approach her and may not know how

  756. to even interact with her because they don't

  757. know her disabilities just even by looking at

  758. her. And you can come up and be like, hey, sweetie.

  759. And she's just going to give you that look of

  760. like, na, na, na, na. And she's going to reach

  761. her slobber finger out towards you. And that's

  762. what she's going to do because that's how she

  763. shows she loves you. Because you can tell by

  764. looking at me and wherever we go, we have wet

  765. spots. I mean, so that's just life. But as you

  766. hang out and spend time with her, you realize

  767. the first thing is that she appreciates every

  768. single interaction. Like, she soaks it in like

  769. a sponge. And so I think for us, like, just going

  770. out of our comfort zones and interacting and

  771. talking and treating people like people, right?

  772. I mean, that's just the overall rule that we

  773. can always do better at no matter where we're

  774. coming from or who the person is. But, you know...

  775. It's just one of those funny things, like even

  776. with Cameron, I blew Cameron's mind this morning

  777. because he was like, well, why doesn't Sweetie

  778. come to Treehouse? And I'm like, because she's

  779. 18. She's an adult. But you wouldn't know that

  780. maybe by first looking at her. And so there's

  781. a lot of things like that where it's just understanding

  782. as people that we have to treat people as people

  783. no matter what we want to label them or put them

  784. in categories. You know, and that's just loving

  785. them as they are, giving them the respect they

  786. deserve, talking to them, interacting with them,

  787. giving them the time of day because we all deserve

  788. that, you know, and just being aware of that.

  789. And it may be hard and difficult, but I think

  790. it's just taking the first steps just to break

  791. through those barriers yourself, not expect them

  792. to come to you and be like, hey, this is what

  793. you need to do. Like, break through the barriers.

  794. Like, be the person that takes the first step.

  795. Find spaces where it needs to happen, where you

  796. can. And that goes with all things. Man, put

  797. yourself in spaces other than what you live in.

  798. Get outside of your circles. That's really how

  799. change happens. That's really how we learn, right?

  800. Like if you never went to school, you'd be like,

  801. you probably know a lot less than what you know.

  802. Because you had to get up every morning and you

  803. had to go somewhere to learn well That's still

  804. the model we live in every single day like you

  805. we have to go out of our comfort zone And we

  806. have to go to spaces we have to be around people

  807. we have to interact and the more we interact

  808. We realize how human we all are and then we can

  809. begin to change and grow from those perspectives

  810. Thank you, you can each take a deep breath unless

  811. you have something you'd like to add we're Just

  812. a kiss from sweetie. Thank you, sweetie. You

  813. guys okay if that's our stopping point? Okay.

  814. A couple quick comments. Thank you all so much.

  815. Your answers have really resonated with me emotionally,

  816. and I know I feel listening to you heard and

  817. seen in really special ways. And so thank you

  818. for that. I'd also like to do something. I'd

  819. like to have Pastor Jen and Pastor Greg come

  820. up, and I'm going to say a prayer for them. And

  821. as they come up, I want us to think about the

  822. work that they do to, if you'll come up on this

  823. side of me, to have our community be the special

  824. place it is. And when I think of these panels,

  825. I know they're different from what we're used

  826. to. But they're also discipleship. Isn't following

  827. Jesus learning more about how to be like Jesus

  828. and what he thinks and feels? And aren't we better

  829. able to be Christ followers as we hear and see

  830. these things? I think so. So I'd like to pray

  831. for Pastor Jan and Pastor Greg. I want to thank

  832. God. For the insight that he's given them and

  833. the heart that he's given them. And also that

  834. you would continue to lead them as they make

  835. these efforts to make our church a more welcome

  836. place. So I'm going to go ahead and pray for

  837. that right now. Father, I thank you so much for

  838. Pastor Jen and for Pastor Greg. And I thank you

  839. for the heart that you've given them to love

  840. people in unique and creative ways. and to go

  841. beyond the all are welcome that we see on so

  842. many church signs and that so many people think

  843. that they mean, but don't understand what that

  844. entails. Thank you for towards people of all

  845. the things we're talking about on these panels,

  846. especially today with disability, the heart that

  847. you've given them to ask questions and to read

  848. deeper into your scriptures. And I pray that

  849. you'd continue to guide them as they go on that

  850. journey to have increased insight and wisdom.

  851. And we ask this in Jesus name. Amen. Amen. Can

  852. we thank everybody up here one more time? All

  853. right, panelists, you're dismissed.